I post about a very very special family

Hello everybody, and happy Sunday.

Today is another wonderful day, to give thanks to the Lord Our God for the blessings that he has given us, and for his mercies which are new every single day.

You know, there's a song by Gale Jones Murphy, and It's called, "His Mercies Are New, Every Day!"

It's a very beautiful song, and It's brought me to really Thank god every single day, for his faithfulness, and his new mercies.

We have an amazing God, who performs so many miracles and who loves us more than anybody could even begin to describe.

I could go on and on talking about what God has done for me, but I want to talk to you about something very special that God has put on my heart.

It's actually a someone.

His name is Aaron.

He is a young boy who has a genetic disorder known as Trisomy 18.

This disease effects numerous functions of the body, including the heart, and the lungs.

Aaron is a very special five year old boy who I believe God has put on my heart for a reason.

This past December, on a Thursday evening, I came upon his blog.

I've read many blogs of children who have special needs in the past, but this was different.

His Mother Rebekah Peterson, is the one who writes in this blog.

What caught my attention is a post in 2011 where she took Aaron to church with her.

Now Aaron has a tracheostomy, and uses a ventilator, and oxygen.

She had to take, Aaron's ventilator, his oxygen tank, his suction machine, his pulse oximeter, and other trach supplies, and then most importantly, she had to take Aaron.

She took him to church when he was a wee bit less than one year  old.

Well, she described that during the song service, she had noticed that he was waving in time with the music, and then when they would stop singing, He stopped waving.

That really  touched my heart, because, It really brought me to the conclusion that like Me, Aaron loves music.

In a later post, she had been talking about how they had been singing different parts of George Fredric Handel's Messiah, which is a work that I love very dearly.

Well she had discussed that she would also sing to Aaron.

This family quite obviously is a very musical family.

All of this touched me very very dearly, and from that evening on, I've felt that there is something very special about Aaron.

Like me, he loves life, and you know, since I've been reading his blog, classical music has been more dear to me than ever.

I find myself continuously thinking about the wonderful music that was written by these wonderful composers.

For example, "Handel, and his Messiah!"

This wonderful work of music, makes me think about our wonderful savior, who was born, who dedicated everything to serving the Lord, and who died on the cross for us.

I always love to think about what he did, when he suffered and died for all of us.

You know, when he was upon that cross, being mocked and being beaten, Here is what our savior said.
"Father, Forgive them, for they know not what they do!"

You know, that prayer is so profound that no words can describe it's power.

Here our savior is, upon the cross, he had taken the pain of the world upon his shoulders, and He was now being nailed to the cross, and He asks his father to forgive the ones who were killing him.

Well, since reading Aaron's blog, I have become so much closer to my savior.

I find myself spending more time with him, and really thinking about what he did for all of us.

I also find myself continuously praying for Aaron, and his family.

I've woken up in the wee hours of the morning, and just been inspired to pray for Aaron, and his family, as well as the physicians, and nurses as well as the other healthcare staff that take care of him, including the Respiratory Therapists, the Radiologists, the Physical, Speech, and Occupational therapists, etc.

I have made Aaron apart of every single prayer that I say, every single day!

Every morning, when I wake up, I ask that the Lord will give Aaron and his family many blessings throughout the day, and that the lord will help Aaron get through the day, without any respiratory, or cardiac issues.

Every night, I pray that god gives Aaron, and his family a restful night's sleep, and that God gives Aaron wonderful music to listen to, and that he wakes Aaron and his family up that next day, refreshed, and ready to begin the new day, with new mercies, and new blessings.

I find myself playing the piano more, and wanting to learn more pieces, to spread my musical library, and to express my profound love for classical music.

When I read Aaron's blog, It really gave me time to think about how music has impacted my life.

Being that I have perfect pitch, and synesthesia, I actually see music, because I see colors to the music that I hear.

I've found myself simulating conducting more when I'm listening to music videos on YouTube.

My favorite Bach Piece, "Capriccio, BWV 992," which I've come to adore over the last several months, has become apart of me.


You know, It's stated that children with Trisomy 18 are Not compatible with life, and that saddens me, because Aaron is definitely thriving very well, and you know, seeing his blog, or rather listening to his blog, with my text to speech reader, has really brought me closer to Jesus, because I realize how powerful the savior is.

How he performs so many miracles, and how he truly loves all of us.

I wish more people knew our Lord and savior, because, if they did, oh what an impact on the world it would be.

We could all rejoice and praise God for the great things that he has done.



I've been impressed with his Mother Rebekah Peterson, because I have obviously noticed in his blog, that this is a very very dedicated family, and she strives to give her family the absolute BEST possible, and you know, I just sit here and I listen in utter amazement at how God has worked through her for this whole family.

I know, her children are indescribably profoundly blessed to have her as their Mother, and It just amazes me, and listening to her blog, I just stop, and I say to our Heavenly father, "Thank you.

Thank you Lord for giving her the courage, the strength, and the guidance she needs."

I will find myself asking God to give encouraging words to Rebekah and to tell her andher husband what they need to know to take care of the whole family!

I've found myself praying so much more, thanking God for giving us life, and for so many things.

In the beginning of January, in the wee hours of daylight, on a Monday morning, after being inspired by God, I did a special video for Aaron, and his family.

Being that they are a very musical family, I decided I wanted to do a video of me playing various pieces on the piano, for Aaron.

You know, I remember that morning so clearly.

I woke up, had my morning worship, ate my tube feeding, and then, a little bit later, went to the piano, and before initiating the recording I asked God to bless what I was doing, and to help me to bless this wonderful family.

I asked God to bless my music that I was doing, because what I was doing at that time, meant so much to me.

I had my ventilator sitting on the foot stoool behind me, and in the video you could hear the drone of the machine in the background.

I would watch the video later and realize that my velcro tie for my trach had been sticking out and it looked sort of strange but You know, I asked God to help others to look through that, and to be blessed by the music that I asked God to bless!

So, I did the video.

The quality was not the best, but It got uploaded to YouTube, and then last week on a Sunday evening, Aaron's Mother messaged me on facebook, and said that she'd seen the video.

I told her how blessed I'd been after seeing Aaron's blog, and how much I'd been praying that God would through me, bless the whole entire family.

Well, a wee bit later, a discovered that Rebekah had put my video upon Aaron's blog.

When I saw that, I about screamed with delight, and then I thanked God for what he had done.

I felt tanks of Joy emptying into my heart, and the feeling that I had, and have now, is to say the least, utterly indescribable!

Last week, and even now, I've been filled with utter happiness.

I've felt like the  Human motorcycle with turbo drive, and you know, It felt so good, because I'm addicted to helping other people.

I have a very tender heart, and I pray every day, that God will keep my heart tender, and will keep me humble.

I'd like to share the  blog with you, and the link will be below, but I just want you all to know, that God has put Aaron on my heart, and I know it's for a reason.

I believe it's to inspire me to make music, and to express my profound love for music.

God says, "Make a Joyful Noise for the Lord."

I want to do that, and we all should.

Thank you very much, may God bless you and keep you, and Please, remember Aaron and his family in your prayers, and Let's spread God's blessings all over the world.

He is mighty, and he is great, and we all should give our hearts to him, and ask him to be our leader.

If you don't know the Lord, and you have not asked him into your heart, you can take the time now, to ask the Lord to come into your heart, and to guide your life, and you can put him first in your life, and I know, He will make such a profound change in your life, and you will feel happiness, that you have never felt before.

I've always been a christian, and so have my wonderful parents.

They've taught me of the wonderful blessings that our Lord can do, and I give my wonderful parents so much credit for what they have done for me!

Here is the blog.

http://compatiblewithjoy-trisomy18.blogspot.com/

The Word drone!

Hello. Good morning to all readers. It is my prayer that you had a wonderful night, with wonderful dreams, and that you have come to wake up feeling refreshed, and ready to receive this new day, with the new Mercies that God has in store for us all. Over the last several months, since I've learned about the word DRONE, I've come to actually develop an interest in it. The word drone couldmean various things.

There are these remote controlled, RC  planes that are called Drones. These things are all over the news if you look now days, and It's not uncommon to hear about how there's been a drone crash somewhere where somebody was injured when one of these things hit the ground, or how people are wrongfully using these things to spy on other people. I think this is called a Peeping tom.I THINK anyways. There is also the use when describing a continuous sound. For example, "The drone of the suction machine filled the room when the nurse suctioned the patient's trach out." Or, "The drone of the ventilator in his room was the only sound that could be heard whilst he slept, no doubt feeling better not having to gasp for breath."


The  word drone could also be used to describe a continuous talking about something. For example, "Aidan Droned on about the Beethoven's Moonlight Sonata for three hours straight until Austin got tired of listening to him, and told him to be quite." Or, "Sean Droned on about the price of gas for 45 minutes!"

The word drone could also be used to describe a moving of a period of time. For example, "The evening droned on uneventfully and the baby slept comfortably without sound." Or "That night droned on  with the only major event being a minor oxygen desat caused when Austin suctioned him at 02:45 in the wee hours!"

I have come to love the word Drone so much.

When I have to suction my trach out and I'm around somebody, like my friends, I'll sa to them before turning on the suction machine, "OK, You'll hear the drone of my suction machine!"

I don't know why that word sounds so cool, but it does.

Well, I hope you all have learned something, and you know if not, maybe you might have realized how important the word drone can be and how it can be used to easily describe things.

I could sit here droning on for hours about it's use, and  how interesting I think that it is, but I don't want you having to read hours of my droning on.

So, without further to do May God's blessings be with you, and may the Lord keep you and your family as well as all of your friends safe in his loving arms. GOD BLESS!!

What a wonderful wnderful day!

Today is such a wonderfully wonderful day. I woke up after sleeping very well last night. I deflated my cuff for my trach, I then turned off  my ventilator after removing the circuit. I got up had my tube feeding after having a word of prayer Thanking Our Heavenly Father for a wonderful day, and asking him to bless my friend Aaron, who's a young boy who's undergoing an operation today. I then had my tube feeding and came back to my room after turning on the coffee for my parents, and now I'm ready to start this wonderful day. I've listened to my beloved piece, "Capriccio, BWV 992, On Behalf Of The Departure Of His Beloved Brother,"  By Johann Sebastian Bach. That pieceis sooooooooooooooooooooo wonderful to listen to!! I'm so thankful for the wonderful night's sleep  that I had last night. I'm so thankful to wake up to a new day, withbrand new Mercies. I'm so thankful to wake up in a wonderful house with absolutely wonderfully wonderful parents who Love soooooooo dearly. We all have so many wonderful things to be thankful. We all should be praising god, every single second of the day for his goodness, his love, and his Mercies. It's just such a wonderful day. I don't care if it's 70 degrees outside or 20 degrees below zero. I hate cold weather, but in my heart, It's extremely sunny, and I'm just so thankful for every single thing that God has given me. We all should be, because Jesus Christ gave HIS LIFE, for us. He suffered and died on that cross FOR US. We have absolutely NO reason to complain, and EVERY single reason to be happy. We should be happy. Our God is such a profoundly mighty god, and He has done, is doing now, and is always going to do absolutely wonderfully wonderful things. He's so good, and I think the more time we spend giving Thanks for his goodness, the better. I heard  wonderful wonderful classical music in my sleep last night. I heard a few Bach Minuets, and Beethoven's fur Elise. It was such a wonderful night, filled with wonderful music, and I am profoundly profoundly greatful that I slept so well!!

So many blessings!

You know, I have so many blessings to be thankful for. We all do. Every single one of us. We need to Thank the Lord Jesus Christ every single day, numerous times each day for the wonderful blessings that he pour out on us. I'm so thankful for wonderful parents who have given everything they could to help getme an education, to help me breathe and to live as health as possible. I'm so thankful for this tracheostomy which has improves the quality of my life sagnificantly, and which has given me so much more energy now that I'm ventilating and oxygenating better with my ventilator, and now I have better secretion management. I'm so thankful for wonderful classical music to listen to. Classical music is so addicting. If you would stop and you'd take time to listen to some of the wonderful composers, such as Johann Sebastian Bach, and Ludwig Van Beethoven, or George Fredric Handel, you'd see just how wonderful this music is. I absolutely have fallen in love with Bach's music especially. The Piece  known as "Capriccio, BWV 992 On Behalf Of The Departure Of A Beloved Brother," has been a piece that I've been working on on the piano lately. It's such a beautiful piece. Especially the first movement. It's so addicting to listen to that piece. When I was in the Pulmonary ICu after my trach, and I could not speak, I listened to that wonderful piece over and over and over and over again and even though most nights there I really did not get any quality sleep, that piece really blessed me. I was lying there in the ICU bed on the Servo I ventilator and I was listening to a YouTube playlist with different versions of that piece inside of it. I loved the harpsichord version the most. It's a video that all you can see is the sheet music layed out on the screen, but what you hear is indescribably beautiful. So I'd lie there just loving that piece. It's what helped me remain calm even though I was in hurting and even though the day of my trach, afterwards, when the nurse attempted to feed me through my G-Tube it all came back up all over me. But you know, that night as I was unable to get hardly any sleep, the thing that kept me from going mad was the wonderful Music I listened to. I also listened to a playlist filled with Minuets. Minuets are absolutely beautiful. Especially Bach Minuets. This playlist had over  100 videos inside of it, and so I lied there and whenever a nurse or technician would come in, they would comment that they enjoyed my music. At one point, I sat up in the bed and started conducting with my hands, and I could not speak, but I was laughing, and setting the ventilator's high pressure alarm off with my laughing. they were all laughing as well. Classical music really seems to be the thing that gets you through ilness and gets you through the recovery process after operations. It's done that with me. It's how I got through my 28 days in the hospital last year where I underwent three operations, two of them very major operations. It's how I entertained the nurses when I could not even speak. I'd have classical music playing all day and all night and they would all comment on it. I'd have Beethoven playing sometimes, or sometimes I'd have Mr. Mozart playing. Sometimes it'd be Sir. Johann Sebastian Bach. Sometimes it would be a variety of the composers. But classical music has really really been a blessing. We all should be listening to this absolutely wonderful music, and we should all be learning the names of these pieces and the composers that they belong to.

Good Afternoon World!  My name is Peter, I love to be called "Johann"!  Welcome to my blog!  It is a cold dreary day in my neck of the woods, but in my heart, it is perfectly sunny and perfect!

I have started this blog to spread blessings and joy to all that would like to receive it!  I have many medical conditions, but I still push forward everyday with spreading love and joy to anyone and everyone!

Just a few guidelines to my blog, you may ask questions about what is wrong with me, as long as you don't accuse me of being disabled, I am very able!  All comments will be reviewed before being posted, and no negativity allowed!

God Bless and have a wonderful day!