Well, last night as you could tell, I wasn't feeling well. I was up most of the night again with mucous plugs, and for some reason my stomach didn't take too well of the food going through the pump throughout the night, and well My stomach was hurting really severely this morning. Today has been a rather quiet day with a lot of mucous plugging and me sleeping on and off throughout the day.
If you read my Facebook post last night, I mentioned that I really needed prayers, because there's a slight possibility I might be getting a Heated Wire Setup. A medical company near where I live is going to come tomorrow with an LTV 1150 and a Fisher & Paykel MR730 Humidifier which is really a nice Heated Humidifier, because not only will It have a Heated Wire, but also, I can adjust the settings, unlike on an MR850 which has two modes, one for Non-Invasive, and the other for Invasive, and that's it. I would rather have an older model if it means I can have control over the temperature of the heating wire, and the temperature of the water in the chamber. Tomorrow, we're just going to evaluate what this new company can provide me, like whether they would be able to provide me with an extra battery, two ventilators, whether ordering supplies would be easy, or whether It would be an extremely hard, if not ompossible process, and whether they could provide my other equipment.
It's still not certain what's going to happen, but I really need to put an end to this thing with the HC150 because my secretions and plugging are becoming so out of control It's really taking my energy, and my lungs need to be clearer, or I'm going to end up with Pneumonia, or something that I do not want.
I am certain that If I could get an actual heated wire system, this would improve, if not completely resolve the plugging issues, with those occasional plugs being an obvious thing with my trach, but if It could at least get me out of the continuous plugging issues, and help provide more comfort to my ventilation, that would be absolutely wonderful. One shouldn't have to feel cold air in their lungs when being on a ventilator, and one shouldn't wake up coughing for hours at night because the cold air is very very painful in their lungs. I really hope that very soon I can get rid of this old HC150 becaude I really need the propper heated humidifier for my ventilator.
In other words, Tomorrow, Heather and I, will be going to the University to play the harpsichord. Well I'll be playing the harpsichord, and she'll be listening, and O, and guess what. One of our friends wants to come and hear me play too, and that's what I'm looking forward to the most. It's gona be AWWWWWWWESOMe!! I look forward to playing for Edie and Heather before I come home and the person who works for this DME comes out. I mean, I love playing for others, and Edie loves classical music.
During the Drone party, at that small concert I performed, at the end when I'd played "Capriccio, BWV 992, On The Departure Of His Beloved Brother," by J.S. Bach, Edie was back there giving me a standing ovation, and that meant more than anything could begin to describe, and so as you might be able to imagine, tomorrow, the prospect of playing for Edie, and Heather excites me to such an extent. I can't wait to get up in the morning, and put on my Suit for the performance. Yeah, I'm the kind of person that wears a suit when He's going to perform. And tomorrow will be no exception. I'm going to be standing before two great people playing a very very wonderful and special instrument, and I feel it's of profound importance to look the ABSOLUTE BEST. Essentially I will dress in a Suit like I did when I performed Aaron's Minuet, and like I did last time I played the harpsichord.
Classical music is something I take very very seriously, as it's my world. Classical music is my life, and is becoming more and more the case.
So, tomorow, I will dress up fully prepared for what's going to happen.
I hope that you all have a wonderful night, and may God bless you and keep you.
REMEMBER everybody!
ONLY HE, can love you PERFECTLY!!!
You are about read the blog of Peter Johann. In this blog I talk about numerous things including my love for classical music, my love for my savior Jesus Christ, and my interest in the medical field. I love life for what God gave me, and so I will share my life with you, and all the blessings I have received.
