Musical Mobiles and classical music!

Some people might find it very unconventional that I like those musical mobiles that they put on the baby's cribs.

Well, I happen to love those things.

Well, at least the electronic ones that play several pieces.

I am not talking about the ones that you have to wind up and that only play one piece.

I'm talking about the ones that either have a button on the side or a series of buttons somewhere on the mobile and or they have a remote control that can be used to turn the thing on from outside the room, or in another room.

Those things often have a library of pieces and yeah, I've heard a few play Bach's Minuet in G Major.

They often seem to get the key wrong though.

I've heard the Minuet played in F Major or even in A Major which does not sound too bad, but I think it's good to keep it in the key that it's composed in.

Most people would not tell you that they could stand there and listen to those things for quite an amount of time.

I'm different.

I LOVE those things.


Why?

Because the way they play classical music is just indescribably beautiful.

Years ago in 2006 when I was at my Braille Teacher's house being that I went to a lady's house where I learned the braille code for Math and various other subjects, well she had a baby and I remember working in the kitchen.

This was in the month of march in the year of  2006 and I was working on very complex math.

I knew her baby had a mobile because I'd talked to her about it and she didn't have any idea what pieces it played and didn't want to adjust the settings and just wanted to leave it on what it was currently on.

Well one day I guess it got accidentally changed, because I remember when she'd put the baby down for a nap, I  heard  Pachelbel's Canon In D Major," playing.

I remember when that happened my heart sky rocketed.

The question of "WHAT OTHER PIECES DID THIS THING PLAYED," now screamed at me louder.

I needed to get my math work completed though.

My heart was racing and I remember gasping and I said, "OH MY GOODNESS, That's The Canon In D!

That is Pachelbel's Canon in D Major!"

"Could you turn that down a little bit because I won't be able to do anything now thinking about that thing, and oh my goodness!"

I am amazed I got anything done that day, but of course what did I do?

I prayed to God to help me, and He did.

As Jesus always does help us when we're in trouble!

She laughed and turned the baby monitor down some.

You know, I never did find out what the whole entire library of pieces was on that thing.

By the time she took the mobile down she'd already taken the batteries out.

She'd  allowed me to see it up close and touch it but I still to this day know not what other pieces it played.

I often wonder now and have guesses to what it might play and some of these guesses are pretty complex.

I wonder if it played "Minuet in G Major" by Bach, or even the wonderful G Minor Minuet by Bach.


I wonder if it played any of Bach's beautiful Preludes.

I wonder if it played The Pathetique's Second Movement by Beethoven.

I love the Pathetique.

I wonder if it played "Fur Elise," by Beethoven.

I wonder if it played Handel's "Suite NO 11 in D Minor!"


I wonder if it played any of the movements to the Moonlight Sonata.

I wonder if it played so many other pieces.

If I ever heard one play "Capriccio, BWV 992," by Bach, Oh, now I'd faint.

My imagination is going wild right now just thinking of how many pieces I have wondered if that thing played.

Those mobiles are cooooooooooool.

I've had a few dreams of those things.

One dream was that I heard one play the Aria from Bach called "When Thou Art Near."

That piece played in E Flat on a mobile would be PERFECT.

It'd fit the mobile perfect.

I think some of the movements to "Capriccio," would  fit a mobile PERFECTLY.

I think  the first movement of the "Goldberg  Variations," would sound wonderful on a mobile.

The  fascination I've had with these things is  rather unconventional, and you know what?

I'm unconventional anyways, so I guess it fits me fine.

Another dream I once had was that one played one of the D Minor Preludes by Bach that I really enjoy listening to.

I've had other dreams of those things playing different pieces.

Yeah, I know, I'm unconventional, and I'll admit that.

You might say I'm oscillating.

LOL.

If you wonder where I got that joke it's from my interest in ventilators.

If you're not on a conventional ventilator, you're likely to be on either a Jet, or an oscillator.

If you're a premature baby you are most likely to end up on an oscillator but they do still use Jets now days.

If you are an adult 99% of the time you'll end up on an oscillator if you're beyond conventional ventilation, or ECMO.

The oscillating ventilator is for another discussion I'll conduct on ventilation.

Anyways, I'm getting into another topic and I'm doing something I do best which is DRONING.


I hope you found what I had to say today somewhat interesting.

God bless you, and REMEMBER!

Only HE Can Love you PERFECTLY!

Adapting leasure to the trach and ventilator patient!

Well, It's another wonderful morning here in my house.

Mom and Dad are watching TV.

I slept well last night only having to suction a couple of times.

You know, lately with my massive increase in my massive interest in classical music, and with the way that some pieces make me feel like I'm swinging, for example, the 2nd movement of the  Beethoven's "Moonlight Sonata," I've been thinking.

For somebody like me who uses a ventilator, I wonder how one with a trach and a vent, who's connected to the ventilator would swing if they wanted to.

I've come up with a couple of ideas.

One is that somebody would have to stand very close to the swing with the ventilator so that when the person was swinging the ventilator circuit would not get wripped off thus possibly also resulting in a very painful decannulation, or removal of the trach tube.

And in this process this would have to be done carefully with the person who is holding the ventilator standing off toward the side, close enough, yet not too close so that the result is the ventilator holder ends up getting kicked.

That would be horrible.

Another idea would be to put a very special and very very SECURE ventilator mount on the swing somehow so that the patient and ventilator could both swing and so that the ventilator would not go flying when the person startes swinging.

This ventilator mount would have to be secure so that the ventilator is held securely, otherwise we might have a ventilator turned into a projectile which would be dangerous for anybody standing around the ventilator and horrific for the person who's on the ventilator because they might end up becoming disconnected from the vent and possibly decannulated.

We must also not forget the patient who also uses oxygen that is being bled into the ventilator.

So now  we would have to have a tank mount along with that ventilator's mount and not only that, the tank isfull of gas, and these tanks can explode and I've heard they're like a bomb when they do explode, so this tank mount would have to be very very very very tightly secured so that when the patient was swinging, the tank would not go flying out.

Not only that, but we would need to prevent the tank from bumping against things when the swing was in motion, which could be easy to do.



The next idea would be to invent a swing that's specifically designed for the vent patient.

This would include a ventilator mount, a circuit support mechanism, and a very very secure oxygen tank holder where the oxygen tank gets strapped in very tightly to not only allow access,but also to prevent an oxygen tank from being turned into  a projectile.

I've had an interesting amount of thought about this, especially over the last month.

Some might just say, "Can't swing on a vent," but you know if there's a way to adapt something so that a person on the ventilator can enjoy it as much as a person not on the support of a ventilator, than let's work to adapt that to the best of our ability, and to adapt it in a fun, and a very safe way.



So those are my ideas for  a swinging ventilator patient.

I love thinking of  unconventional ideas like this, and unconventional situations such as this one.

It's just like being in a pool with a trach and a ventilator.

I think there could be some way to wrig up a ventilator support mechanism so that the circuit could be held outside of the water and so that it would not get pulled on.

We must be careful not to get water around the stoma though.

For patients just sitting in the pool not really intending to swim, a motorized lift could be used to hoist the patient down into, and up out of the water, similar to what happens with the Hubbard tank.

If a patient was going to swim,  I think a special device could be used so that the patient could swim along  side of the pool and there could be somebody standing beside the pool out of the water holding the ventilator and maybe something to keep the circuit from getting into the water.

Patients with external PEEP valves such as you might find on the LTV 900s, and 950s would really have to be observed carefully and the circuit with the PEEP valve would need to be held out of the water either manually, or with a supporting arm, and this is also true with the patient who's on ventilators with Internal PEEP such as  my ventilator which is the LTV 1150 ventilator.

If some of the tubing did hit the water it might not be that big of an ordeal, but the Exhalation valves MUST be kept out of the water.

If these valves get soaked you're going to get DISC/SENSE alarms and then you have a pain of a job trying to get the water out of these things and of course with pool water, if that were to happen, you simply change out the circuit because the pool water has other chemicals inside of it.

Of course if it were me, even with Bath water, if water got into the valve, I'd change the circuit, because, umm unintentional water in any part of the circuit, even if it is removed, if you ask me, makes a circuit unsafe for anybody to use!

I know I'm droning on quite a bit, but I've payed considerable amounts of thought to stuff like this lately.

Really for years, but now that I have my trach, really I pay much more amounts of thought to this.

I hope you have enjoyed reading, or listening to this post.

May God Bless You and Keep you.

Remember, ONLY HE, Can Love You Perfectly!

THANK GOD, for In Line Suction Systems!

Well, I'm so thankful for In-Line suction systems.

On my ventilator circuit, I have an In-Line suction system.

What this means is that there is a system that has a suction catheter inside a sheath made of plastic to keep the catheter sterile.

When I require suctioning, I can simply turn on my suction machine if it is already connected to my In-Line Suction system, and then insert the catheter and suction quickly.

This means I don't have to break the ventilator's circuit's connection to suction, and thus lose very precious PEEP.

I'm very very thankful I have this In-Line suction system because a few nights ago, I woke up with a complete mucous plug in my trach meaning the ventilator could not get air in, and I couldn't get air out.

I am thankful that I had the In-Line suction system because I was able to turn on the suction machine, and I worked quickly to get that plug out.

That plugging episode was not very pleasant, but at least I did not have to open a new suction catheter, and thus not being able to breathe for several seconds, or even a minute.

I got that plug out, and once I got it out, I was able tofall back to sleep after turning over and thanking God for that In-Line suction system.

When you have a trach, and you have plugging episodes, if these are complete plugs, you will not be able to breathe, thus these plugs must be removed AS SOON AS POSSIBLE!

I do have a lot of plugging episodes, and can usually get them out with suctioning, and my IPV treatments as well as the administration of Saline down the trach tube.

The Saline is not pleasant, but It's gotta be done.

Thank you for reading my Blog post, and May God Bless you.

Only HE, Can Love You Perfectly!!

ONE MONTH SINCE!

Well, yesterday marks the one month since Aaron's Mother put my video on Aaron's blog.

I know I keep droning on about this, but seriously, what she did, really touched my heart, and It's because of that, my classical music is even more apart of me.

Yesterday morning, I woke up to a very quiet morning.

It was quiet and very peaceful.

I cleaned out my feeding tube after turning off my ventilator and then suctioning my trach out.

As I was at my computer yesterday morning, I felt this very profound peace as I was listening to various pieces by Bach, the main one that I was listening to over and over again was "Capriccio, BWV 992!"

It felt like the perfect piece for that day, considering it was what I played over and over and over and over again that night after everything had happened.

I remember this so clearly as if it actually just happened.

Now, last month about this time, I was in my room rejoicing after that wonderful night. Mom and Dad were still sleeping, but I woke  up and started my morning early as I essentially always do, unless my body's alarm clock decides to do something weird, and that doesn't happen often at all thank Goodness.

But you know, what she did with my video was and is now very special to me.

It touched me and still touches me now that she enjoyed the video enough to put it on her son's blog.

I often wonder what exactly she was thinking when she did that, and all the thoughts that were going through her head.

It touches me that even with the trach velcro sticking out, and my vent's occasional alarm when I'd cough because I moved my head and my trach moved thus upsetting my trachea, and even though the sound quality was not the best, she still liked my video.

Of course, I poured my whole entire heart out into that video when I did that for Aaron.

I gave it every single bit of my heart, and I prayed so many times before, and so many times after.

I pray for Aaron even now, especially since on the 2nd of March, Aaron is going to be undergoing an operation.

To be honest with you, I'm nervous about that, but I am certain that Jesus will get Aaron through this operation, and I am going to ask that he allow as little pain as possible and that he give Aaron's Mom and Dad and the whole entire family strength to help Aaron through this operation.

I'm going to pray that Jesus speak to Aaron in the way that Only Jesus can speak to somebody.

I know from experience, operations around the face and the ears are very very painful.

I've had numerous operations on my face, my eyes, and then one on my head to fix a Chirare malformation.

I know that God is going to get Aaron through this operation.

He will get this very precious family through it as well.

I know, because God can and will do that.

Our God is so amazing, and so profound that there are no words that exist, or that are ever going to exist to describe his wonder, and his grace.

Our God is the only one who is PERFECT!!

So now, I'm sitting here doing what i love to do in the morning and at night which is listen to "Capriccio!"

That piece is so dear to me right now.

I am thankful for the warm days that we have had, and thankful that we only have a few days less than a month until Spring announces itself as our new season, and Winter leaves  us and doesn't come back until this upcoming December.

Honestly though, this winter had been wonderful and I've actually had many wonderful things happen that I give God the Praise For.

I will alert you a couple days before Aaron's upcoming operation and remind you to pray and we will all pray for Him, and his family.

Thank you for reading this blog, all of those who do, and for those who follow it via the E-Mail following function that my friend heather has set up, I give you much thanks for that.

Tomorrow, I will talk to you about something special that means so much to me, and even more now that I've come to know Aaron through his blog, but that will wait until Tomorrow.

Remember, ONLY HE, can love you perfectly!!

VERSE OF THE DAY!

Mark 11:23New King James Version (NKJV)

23 For assuredly, I say to you, whoever says to this mountain, ‘Be removed and be cast into the sea,’ and does not doubt in his heart, but believes that those things he says will be done, he will have whatever he says.

A Played on a harpsichord!

Wow!

What an amazing day I had yesterday.

Yesterday, God answered my prayers.

Our Lord and Savior answered one of my prayers that I'd been praying desperately for a while, and especially since Saturday morning, when the desire to  play a Harpsichord was so loud, it droned in my ear louder than drone can drone.

LOL!

Yesterday, there at Campbellsville University, I played in a concert room on a REAL Harpsichord.

I played my favorite Minuets, and then at the end, I played my Favorite piece that has become Apart of me.

That piece that I thank God, Bach and His Departed Brother For.


"Capriccio, BWV 992, On The Departure Of His Beloved Brother!"

I  played the first movement.

I'm learning the rest of the piece.

The person who allowed me to sit down at the Harpsichord, and who actually allowed me to play that beautiful musical instrument, gets so much credit.

My dear friend Heather Gets so much Credit.

GOD Gets EVERY BIT of CREDIT I CAN GIVE TO HIM.

My parents and  so many other people get credit too, because they've really helped music to become apart of me.

As I was playing, It just felt so wonderful.

I remember every single second of that period that I was sitting at the harpsichord, and  I remember how wonderful it felt.

I had to use every bit of my strength to prevent myself from screaming at the sight of the harpsichord, because at that minuet, I was certain, I was about to play with as much power as I could on that Instrument.

That beautiful instrument, that is like one that Bach, or Mozart would sit at.

I wonder how wonderful It must have felt to Bach to be able to sit at that thing for hours composing his music.

I often wonder how it felt to Bach during the days, weeks, or even months that he spent composing, "Capriccio, BWV 992!"

I wonder how Handel felt sitting there at this beautiful instrument composing so many pieces.

I wonder so many things.

As I was sitting there Playing my Favorite Piece, well the first movement, It just FELT RIGHT!

If you read all my other posts, you'll know how I've droned on about the 24th  of January when Aaron's Mother Put my video that I did for Aaron on his blog.

You know, I know I'm droning on and droning on about this event, and to some of you, it might get annoying having to read about it again, but you know, that event was such a huge event to me.

That event when I looked at her last blog post after Elana had recommended that I do that, and that second when I saw my video at the bottom of that blog post, It really really really had an indescribable impact on me.

Elana did not specifically say, "Your video is on Aaron's Blog!"

She said something along of, "You might aut to go check out the last blog post, because you might see a face that you recognize!"

Elana was right about that.

I id see a face I recognized.

I can't see faces very well, but I saw enough to know it was My face.

I saw the velcro to my trach tye sticking out,and I saw part of my In-Line suction system that is connected to my ventilator's circuit.

That was enough to let me know who's face it was.

I cannot begin to describe how much happiness, and how much joy as well as how much delight filled my system at that second!

I did that video because I was touched by Aaron's blog, and How his Mother had taken him to church that day, and would sing to him.

I was touched by this family's love for music.

At that minute, when I saw my video on his blog, It felt so wonderful, that there are truly no  words to describe it.

There were, and still are no ways for me to put words into how wonderful that second was when I saw my video on his blog.

It touched me, I teared up, I was being poured full of Tanks of Joy.

I was rejoicing that she had seen my video.

When I did that video, I put every single bit o f my heart into it.

I prayed before the video was conducted.

I prayed before I began the process of Uploading that video which took quite a while because of some issues I had with my YouTube account and a link that i had to click to recertify it, or something I don't remember the exact nature of the issue, but then once it was uploaded I prayed so hard that It would bless Aaron and His Family.

I prayed daily, and nightly that they would see it and that they would be blessed.


At that minute, or Minuet as I want to say, LOL when I saw my video upon his blog, the scream I wanted to utter of joy, the scream I wanted to utter of pure happiness, was sooooo profound.

The only thing that kept me from screaming was me praying to God to help me, and then running to the piano, and Playing my "Capriccio, BWV 992," and then when Mom and Dad were in bed, going to my Keyboard, and then sitting down, and playing that first movement over and over and over and over again with the curtain open and with the light out in that room

I think sitting there at the keyboard playing my favorite piece over and over and over and over again, was what calmed me down enough to actually sleep that night!

I slept very well that night feeling like I was on a massive swing, swinging at such a high amplitude.

It was that night, that has really made "Capriccio, BWV 992, On The Departure Of His Beloved Brother," such apart of me.

That piece means so much to me.

I still don't know how Bach would react and what he would say if he were alive today, because Even though He was sad for his Departing Brother, I rejoice in a way, because that piece that Is near and Dear to myheart exists today, because of His brother's departure, and you know, as I was sitting at that electric keyboard in that small room that's crowded with medical equipment, but as I was sitting there playing that piece over and over and over and over again, I really had time to think about what had just happened, and I really had time to really rejoice to God about it!

I had time to really cherish that night and really Give God praise for so many things!

Yesterday, at that harpsichord, I decompressed that scream of Joy very quietly, and gracefully as I played my heart out on that beautiful instrument.

As I was playing, memories of the 24th, and the thankfullness that i felt when I had seen that video on Aaron's blog, gushed through my mind, and I played almost humming as I was playing, but not really humming as my trach was open and I didn't have a free hand to cover it and my Passy Muir Valve was not on.

Now as I sit here and I think of How wonderful this winter has been, you know, I get tired of the cold, but you know, the cold has not really bothered me this year, especially the last two months.

The last two months, since January until Now, have been full of tanks of Joy.

Tomorrow, I'll be uploading a YouTube video where I tell my Youtubers exactly what happened, and how I have been profoundly blessed with these tanks of Joy.

I thank the Lord that I got to play on a Harpsichord.

I thank the Lord for Aaron who God put into my heart because It has inspired me to make more music.

I'm so thankful for what God has given me the last couple of months,and  I'm so thankful that I have a better quality of life with my Trach.

I am TRULY blessed and I can honestly say, GOD IS GREAT.

He does answer prayers.

For all of those who don't believe me, Look at what he's done for me.

He can do the same wonderful things in your life.


He can change your life in such a profound way, if you would only just accept this wonderful savior into your heart.

If you are not even considering it, Listen.

He payed on that cross, being beaten, mocked, laughed at, and the he was nailed to that cross, for US.

If you would accept him into your heart, if You would accept that savior into your heart, and you would Live for him, the one who DIED for you, You would have such a wonderful life with him, and your walk with Him, would bring you such joy.

He has brought me such joy.

He gave me wonderful parents.

He's given me a humble heart, and a very very tender heart.


yeah, I feel saddened when others are in pain, and It hurts me very greatly to see so much suffering, and this is what helps me to pray for these people.

It's what helps me to keep my humbleness and to want to help others.

I want to become more and more like Jesus, and I will become more and more like him, because the most important thing to me is Serving Him.

I'll drone on and on and on and on about Music.

I'll drone on and on about the Hubbard tank.

I'll drone on and on about drones.

LOL!

But My goal in life is to put Jesus FIRST in my life, and to have him help me become a better person.

You know, as for my video ending up on Aaron's Blog, I take no credit.

God gets the credit for working through me.

Aaron and his family get the credit because they've inspired me.

My parents are going to get TANKS of credit for this because they have worked their hardest to make sure I was nurtured and brought up to serve the Lord, and that I grew up to be kind and curtious.

They worked to get me the Education that I needed.

They worked to see to it that I was not put in the Learning Disability class and that I knew the whole entire braille system, and not only that that I learn, Math, Science, English, History, and all that VERY important stuff.

They worked so hard and they sat in their room  together crying because people in the school system didn't think I needed much of an education.

They did not put much effort into my education, but my  parents, prayed, and they worked with everything that they had, they worked to get me what I needed.

My parents have told me that it was so hard sometimes that they would cry together.

Now, if that doesn't touch you, than Your heart must be stainless steel.

I'm so thankful that I have my parents, and when my video that I conducted for Aaron was put upon his blog, I gave God the praise for giving me such an inspiration to do this, and for giving me wonderful parents who loved me, and still love me more than I could know.

I gave God the praise for giving me a Humble, and a Tender heart.


I am so greatful for everything that I have, and yesterday, playing on the Harpsichord, was a MASSIVe event.

I know this post is long, but I'm good at droning on, and droning on, and that's what I'm going to do.

Thank you for reading my blog, and I hope that you Accept our  Lord and Savior into your heart.

God bless you.

Remember.

ONLY HE CAN LOVE YOU PERFECTLY!!

He's always there!

Matthew 11:30New King James Version (NKJV)

30 For My yoke is easy and My burden is light.”

There are times in life when we are faced with a situation that seems that we cannot handle.

It's as if the weight of the world is upon us.

On these days We might feel depressed, and maybe even cry a little bit, or quite a lot.

There are situations such as a loved one's illness, or a loved one's death that we're facing sometimes, and these can be so upsetting, and we might even feel that we will not be able to get through it.

We feel alone often, and maybe we feel as if Nobody else can help us.

There is somebody who can help you.

Our God, the one who gave his life for us all is our healer and our counselor.

He will take our yokes from off of us, and he will help us bear the pain that we're going through.
When you are going through a very difficult time, or maybe even a horrific nightmare, You can just talk to Jesus and  give him your troubles, and He will comfort you, and he will give you the peace that you need to bear what you must.

It might still be difficult, in fact it probably will, but He will not give you anything that you are unable to bear, and He will help you bear what you must handle.

God is always there.

He hears your cry.

When you call out to him asking him for his guidance, and for him to give you the strength, Trust me.

He WILL do it.

He will help us all through whatever situation we might be going through.

Thank you for reading this, and Remember, Jesus is Always there.

Only He can Love You Perfectly!!

Somewhat warmer, and figured out In-Line Inhailer administration!

O, What a wonderful day.

Today It's cloudy, but actually somewhat warmer at 43 degrees ad registered on my digital Thermometer.

In my heart it's 100 degrees F today and It's sunny and very musical.

I slept well last night waking up a few times to situate my ventilator circuit because I'd wriggled into a position that made it pull on my trach, and so I had to resituate the circuit.

I have to do that just about every night.

i am so happy, and am praising the Lord.

Yesterday, I figured out how to administer my Inhailers In-Line with my ventilator's circuit with a special device that I'd received a couple of weeks ago from my DME.

This piece of equipment goes directly in line with my ventilator's circuit so that I can administer Inhailers like Albuterol and so that I can get them deeper into my lungs without using the mask, and having to cover my trach for it.

That did not seem to help.

Besides, if you've got a trach, you should not be covering it to take an inahiler anyways.

Essentially what I do is I connect this device to my ventilator circuit, attach the circuit to my trach again. administer a puff of the emdication during the ventilator's breath, and the allow about 30 seconds in between the first, second, third, and fourth, puff, and after the last puff, I keep the ventilator circuit attached for about one minuet, and then remove it so that I can remove my Inhailer device, reconnect the vent circuit, and I AM DONE!!

Yesterday. I fooled around some with the small device and when I got it figured out, I was VERY VERY happy.

I certainly Gave God the praise that he needed for that.

I have been plugging continuously so I'm suctioning a lot, but I'm trying to drink extra water to see if that helps.
Music wise, I'm still in my classical music binge learning piece after piece because It's become so much fun.

I woke up at 04:30 to get started with that early today.

I'm so thankful for another day.

We all should be, because God has given it to us.

Thank youso much, and God Bless you all!!

A new Minuet is born!

What a wonderful, cold, and snowy day it is here in my neck of the tank.

LOL!

I love the word tank.

I woke up this morning feeling very happy, and I had this wonderful Minuet in F Major in my head.

It's a composition I've already started on.

I'm also working on some Bach pieces today.

My classical music  binge is going very well.

After waking up, I turned off my feeding pump, underwent my IPV treatment on my vent, suctioned, said my morning prayers, thanking God for a wonderful day, and asking him to bless all on my prayer list, remembering  my family and Aaron's family today, and then I cleaned my feeding tube out, and got dressed as well as took my medications.

Afterwards, I went to my keyboard and started playing my composition I had in my head.

It's a beautiful Minuet in the key of F Major.
It's about five minutes, or as I like to say, MINUETS long.

yeah, I know, five minutes is quite long, but I love Minuets.

My favorite Minuets are the long ones.

Today has gotten really cold and we're  expecting a big snow storm.

Thank the Lord, all my vent batteries are charged as they always remain, and we're ready.

I was telling my Dad that if for some reason the power were to go out and I ended up using all my batteries, I might have to be bagged.

So he'd  have to stand there and bag me.

That would not be pleasant.

I would hate for somebody to have to stand by my bedside and bag me because then they would lose sleep.

Which is, UNACCEPTABLE!

But I guess if it has to be done, then it would have to be done.

But I'm just happy that I'm in a warm house where God has placed me, where I'm going to be warm, and where I am very very safe.

god sure sends his wonderful mercies every single day, and I'm so thankful.

thank you o Lord for thy wonderful love, and thy protection.

Thou has given me so many many things to be thankful for, and I ask thee to help me cherish these things always, and help me to be a witness to others of thy wonderful love for all of us!

AMEN!

thank you all for listening to me, or rather reading my blog, except if you use a text to speech reader, than you'll listen, like I do.

God bless you all!!

Remember, Only He can Love you Perfectly!

A REAL HARPSICHORD!

What a wonderful Saturday morning.

I had a wonderful dream last night that I got to play on a Harpsichord.

Not a simulated mode on a Keyboard, but an actual REAL harpsichord.

I woke up thinking, "WHERE IS THE HARPSICHORD?"

It was oNLY A DREAM.

I woke up with a desperate want to play on an actual REAL, harpsichord.

To sit in front of one, and literally play on THE REAL THING!

This morning when I woke up and when I turned off my feeding pump I felt this horrendous desire to play on a harpsichord because you know, listening to all these Bach and Mozart pieces on the harpsichord, It just sounds indescribably beautiful, and to be able to play on a real harpsichord, would be something that I'd consider better than getting my hands on a REAL Hubbard tank.

Yeah, I've wanted to get my hands on a Hubbard tank for a while, but now, even more than that, I want to get my hands on a real Harpsichord and play that thing so badly.

A big reason is because you know that night when Aaron's Mother put my video on her blog, which actually speaking of that, today marks the 20 day mark since then but you know, because of the horrendous horrendous amounts of happiness and joy that were flooding my heart, I was soooooo happy, so joyful, so indescribably horrendously happy, I had to use every bit of my will  power not to scream with joy and pound the walls.

I mean, the happiness i felt that night was what some might call UNREAL, and others might call unspeakable, but I call horrendously indescribably wonderful.

I was so thankful that my video was good enough and that she thought it should go on her wonderful Son Aaron's blog who has really touched my heart, and you know, when I sat there and after Elana had specified that I should check the last blog post out because I might see a face that I recognize, when I was sitting there after looking at the blog post, I mean, the happiness I felt at that second was so horrendously profound, I wanted to scream.

I STILL DO.

LOL!

I had my vent on, and so I could not do that, and also I did not want to scare the living daylights out of my wonderful parents who if they heard a horrendous scream would in fact be concern that I was hurt or something, and they'd come to see what'd happened.

But you know, even now, I feel that and you know, I believe the way to decompress that would be to literally sit right in front of a real harpsichord, something like Bach sat at, and to play.

to play that Minuet in G Major by Bach.

To Play that Minuet in G Major by Johann Krieger.

To Play that Minuet in A Minor by Johann Krieger.

To play Pachelbel's Canon In D Major!

To play the Minuet in F Major by Bach.

to play that Minuet in c Minor, the one in C Major, the one in E Major, the one in F Minor, the one in D Minor, and the other Minuets I adore.

And to play Pachelbel's Canon in  D Major.

and at the end, to play the very very beautiful first movement of "Capriccio, BWV 992, On The Departure Of His Beloved Brother!"

And then to be able to say that I played at a REAL harpsichord.

The happiness I would feel would be so wonderful.

When I think about Aaron, I think about God's gift of Music.

I think about the gift that God has given me with music, and how lately I find myself wanting to play the piano so much more.

I find myself wanting to listen to these absolutely wonderful pieces over and over and over and over and over and over and over and over and over and over again, and then over and over and over and over again.

This music is now my life.

Bach has become apart of me.

That night, when Aaron's Mother put my video on her son's blog, the happiness I felt, and the horrendous amounts of  joy that emptied out in tanks into my heart, were indescribably, wonderfully, horrendously massive,and I Thank God for what happened.

It was then, so many musical pieces came flooding into my brain.

So, now, more than ever, I want to play on a harpsichord, and I mean, THE REAL THING.

The real thing just as if Bach were sitting at the musical instrument himself.

I want to sit in front of that thing, and with my hands on the keys, literally play that thing.

I give God praise, because today marks 20 wonderful days since that huge event, and you know, to some of you that may seem like something small, but you know, to me, IT IS GIGANTIC!!

The whole event was massively GIGANTIC, and I give God every bit of praise for that gigantic event that occured.

Tonight, will mark the exactly 20 day mark!

Thank you for reading my blog, and god bless you all.

Remember, God's love is PERFECT, and he will never leave you.

All that you have to do is to ask Jesus to guide everything that you do, that you say, that you are, and you need to ask him to help you live for HIM.


If you're in the mood for a harpsichord piece, here's one very very very very beautiful version of my favorite PIECE!!

Here you are!
https://www.youtube.com/watch?v=hBR5IjbTFds&list=PLgSebdAnigO1iTkOHuvuItks53kJNWj9e

Classical Music Binge!

Hello.

Well, In a flare up of my happiness last night, when i was thinking about how wonderful It felt on the 24th when Aaron's Mother had put my video onto Aaron's blog, I not only continued working on the Fourth Movement of "Capriccio, BWV 992," But learned a very short but beautiful Minuet in G Major by Telemann.

This Minuet is very nice to listen to, and I sat there in my room listened and learned it practicing on my keyboard that was and is now still beside my computer, which is looking like where it will be staying for now.

Tomorrow, I rejoice as 20 days will have past since that wonderful night.

I gotta tell you, there are no words to describe how wonderful that feeling felt, and how that happiness has lingered with me.

I'm going on a classical  music binge.

I'm just throwing myself into this music learning new pieces one after another.

I'm starting on another Minuet today and continuing with the fourth movement of "Capriccio!"

You know, when I hear these classical pieces, I think about Aaron so much.

God places people on somebody's heart for a reason, and I'm rejoicing and giving God praise for putting Aaron into my heart, and I'm playing more classical music to use the gift that Jesus Gave me.

I will use it to glorify him, and to entertain others as well as myself.

I love Minuets.

Now that this keyboard is in my room, I can just learn piece after piece after piece, after piece, after piece after piece, after piece, after piece, after piece.

There's a volume control, so when I get up at 04:00 in the morning to turn off my alarming feeding pump and to wrince my tube out, I can turn the volume down, and essentially practice in the dark learning these pieces.

This classical music binge is going to be alot of fun, and I can feel it coming on.

I'm so thankful for everything God has given me over the last month, and really over my whole entire life really.

We've got so many things to be thankful for!

I'm plugging a lot so I'm drinking a lot of extra water, and no doubt keeping an eye on my trach and having to suction these plugs out when they occur.

If you don't know what plugging is, It's when the patient's trach develops a mucous plug that blocks air from getting in or out.

This can be dangerous, and must be removed As soon as possible.

Thank you all for listening to another blog post, and God's blessings be with you.

P.S. Oh yeah, that Minuet in E Flat and the Piece to follow, that I'm composing for Aaron, is going very very well.

I'm giving God praise for this, and asking to help me continue on like this!

THE FOURTH Movement!

What a wonderful, cold, and wintery day it is here.

Yeah, normally I do not like winter AT ALL, but you know, this winter has really been good, even with all the plugging that's going on, and the suctioning, as well as the not the best health, I'm praising God.

I mean, I've had so much happen this winter.

One of the best things is since we've had quite a bit of snow, School has been out, so Sammy has been with Heather.

I want all of you to know how much of a wonderful friend that Sammy and Heather are to me.

Sammy has been there for me when I've been sick, He called me several times in the hospital even when I first had my trach, and couldn't speak, he called me and talked to me, He called me on my birthday, and well Him and I played a joke on his mother one day and as we say, "HEATHER GOT TANKED!"

Well, It's a long story, saved for another post, but essentially it has to do with text messages, and Hubbard tank being written in like loads of text messages.

But anyhow, Sammy has meant soooooooooooooo much to me, and whenever I see him, it brings me tanks of joy.

I've seen him SEVERAL times this year because of the snow, and I'm so thankful for the snow.

OK, Not only that, but as you already know from me droning on about it Non-Stop, Aaron's Mother put my video on her blog on the 24th of January, and I've learned the first movement of "Capriccio," over the winter.

This winter has been wonderful.

Speaking of Capriccio, today's been warm and so pleasant because I'm starting on the FOURTH movement.

I know you're thinking, "WHAT ABOUT the Second, and the Third first Johann?"

Hey, I LOOOOOOOOOOOVE the fourth movement.

That's the movement that makes me feel as if I am swinging wayyyyyyyyyyyyyyyyyy up in the air on a massive swing.

I ADORE that movement.

When Aaron's Mom placed my video on his blog, I was so happy It felt like I was swinging, and you know, thinking about that night right now, makes me so happy and makes me want to start on the fourth movement.

It's not easy, but you know, something being HARD, and something being IMPOSSIBLE  are two entirely different things, and this piece is HARD, NOT Impossible to learn.

And the thing about hard things when you learn them, they first have to be hard, and when you practice and you learn to kill the hard, you do just that, and the hard becomes Nonexistant, and the piece becomes EASY.
Just like when you're learning to care for a patient who has a trach, and a ventilator.

At first, when you see the ventilator, the humidifier, the oximeter, the oxygen, and all of that other stuff, It seems extremely complicated and you have to learn, but once you learn how to do stuff like Change the vent circuit, suction the baby's trach out, place a regulator on the oxygen tank, change the trach, clean the tracheostomy sight, perform the tube feedings, etc, the hard becomes EASY.

So, as I'm learning this movement, I'm going to practice and practice and practice and practice and pratice, until I get it down, and the hard will go away, and the hard becomes the easy.

I WILL learn this whole entire piece, and then I will PLAY IT!!

God will be my guide, as I ask him to guide me and help me to learn before every practice session.

I will give thanks to him once I have each movement down, and at the end of the piece when it's all down pat, I will give him tanks and tanks and tanks and tanks of praise, even though, I've been doing that already, because I'm just so happy to have him as my Lord and as my  Savior.

This piece at first will be very difficult, but not Impossible.

I will practice, and destroy the difficult so that what was difficult, is now easy.

THIS WILL GET BETTER AND BETTER.

I love "Capriccio, BWV 992, On The Departure Of His Beloved Brother," So much, and will learn to play it, and will master it.

Thank you, and God's blessings be with you all.

An Idea that I Thank God, Bach, and his Departed Brother for!

Wow.

I'm so happy.

Right now, I'm so thankful that I was able to find me another wonderful version of "Capriccio, BWV 992," on YouTube today.

Yeahhhhhhh, another version.

This piece is so addicting.

Just a wee bit ago, I was sitting here at my computer, with the drone of my ventilator in the background, and I was listening to this version of "Capriccio," and I've hatched an idea.

As some of you might know, I'm composing a minuet in E Flat for Aaron, the boy with Trisomy 18.

Well, as I was sitting here listening to "Capriccio, BWV 992," my brain thought of an idea.

With that minuet, I'm going to compose a small piece to go with it in B Flat.

Somewhat to the melody of  "Capriccio," but somewhat different.

This idea has come to me somehow, but it could be because of how much I love the soothing first Movement  of this wonderful piece by Bach.

So, the Minuet in E Flat will be first, and then very shortly after that is going to come a small piece in B Flat Major that will be called, "Aaron's Piece!"

You know, my brain thinks of things like this all the time, but this has really become special to me.

over the last month, classical music, has become even more apart of me.

Yesterday when Heather, and my dear dear friend Sammy were at the music store, and after Sammy played  on an electric guitar for me, I went over to one of their keyboards, and had them place it into the Harpsichord mode, and then increase the volume significantly so that I'd get the real effect of almost being at a Harpsichord.

You know, as I was playing Minuets, and the finally the first addicting movement of "Capriccio," I thought of so many things that had happened over the last wonderful month.

You know, as cold as the winter has been, it hasn't seemed that bad to me, and it could be because of how many wonderful things have happened to me.

As I was playing yesterday, the events of January the 24th, 2016 when Aaron's mother placed my video on Aaron's blog, replayed themselves in my head.

The evening when I was rejoicing, and then droning on to my friend heather for like an Hour onfacebook about what happened, and then the hour later when I was sitting at my keyboard playing that first wonderful movement over and over and over and over again, and then the next day when I woke up feeling like the Human rocket ship, and that whole week when I just felt absolutely indescribably wonderful.

They were all playng themselves in my head, and wonderful memories played themselves so clearly, It almost felt like it was happening to me once again.

Yesterday, I took time to really Tell God how happy that I was, and how thankful that I was that he had given me a tender heart and that he gave me a heart that cares for others, and I thanked him for putting Aaron into my heart.

Today as I sit here listening to Bach, I just want to scream because I'm so thankful, and  I've realized that if everybody in this world had a tender heart and we all would help one another, the feeling we'd all get would be what I call Horrendously wonderful.

We'd all be doing what Jesus did.

You know, Jesus performed so many miracles, and He does even today, and we should be asking him to help us become more like him.



Aaron's love for music, and his musical family, as well as my love for music, have really come together, and I have been inspired to compose these two pieces.

The Minuet in E Flat is going very well, and as I sit here, I can here exactly how the second piece that follows the Minuet is going to be.

I can hear the drone of a Harpsichord as it's playing these two pieces.

I wanted to share with you what I was thinking today, and how thankful I am that Bach did compose "Capriccio, BWV 992!"

You know, if Bach were alive, he might not be so thankful that I'm thankful that his beloved brother departed to wherever he departed to, but you know, his older brother's Departure would come to be such a blessing to me many many years later, because It's how such a wonderful piece came about, and It's how I've come to adore the beloved piece that is, "Capriccio, BWV 992, On The Departure Of His Beloved Brother," by Johann, Sebastian Bach, the Musical Genius!

Aaron has really inspired me, and I give God the praise, the glory, and so much thanks for putting such a precious human being into my heart.

This has made me want to glorify God even more, and to tell others about his love, and what he has done, is doing now, and will do for them, if they accept him into their hearts.

It makes me want to draw closer and closer to my heavenly Father.

The one who gave sight to the blind.

The one who made the lame to walk again.

The one that raised the dead.

The one that broke bread.

The one who's body was broken and bled for me.

I want him to be my light, and I want to keep my eyes forever focused on him, and that's my prayer, and it should be everybody's prayer!

ALL OF OUR PRAYERS.

Thank you for reading this post that I know, drones on and on.

I must be a dronist!

LOL

that's not even a word, or well, it wasn't, until now!

I guess it is now!

I'm a pianist, and a dronist!

I could invent a musical instrument called a drone.

Hmmmmm, I wonder if that would be possible with some parts from an old ventilator circuit, and some suction tubing from my suction machine!

And then, I could compose a piece on the drone, called the "Drone Minuet," but then the Minuet would have to be long, and would have to drone on and on and on and on for who knows how long!

God bless you all!

The extremely extremely wonderful and swinging dream!

Last night, I had the strangest and the most wonderful dream.

Last night, in this dream, I had my ventilator on me, and I was sitting extremely high up several feet in the air on this giant swing.

I remember my ventilator being fascened to the back of this swing.

It was a motorized swing and so I could hear a rhythmic clicking as it was swinging, but I was swinging extremely extremely high.

I remember that it was daylight outside.

As I was swinging, I heard the fourth movement of my favorite Piece, "Capriccio, BWV 992, On The Departure Of His Beloved Brother," by J.S. Bach.

This movement is my favorite.

I'd always pictured a swinging motion as I heard it, or I've also ictured myself getting onto a motorcycle after putting on the profoundly important helmet.

well, in this dream, I remember I was swinging in rhythm to the movement which was being played loudly on a harpsichord, very slowly.

It was an indescribably wonderful dream, and makesme enjoy Capriccio, Even more.

that piece has become near and dear to my heart.

I remember onthe 24th of January, 2016 when Aaron's Mother, had put my video upon his blog, well the happiness i was feeling was horrendously wonderful, and what did I do after droning on to my friend  Heather for who knows how long about what'd just happened?

I was at my keyboard with the Harpsichord mode setting activated, and I kept playing the first movement over and over and over and over and over and over again.

I just can't get over how much the first and the fourth movement really speak to my heart and how I love to play this first movement when I'm happy, and that night, I was horrendously happy.

I kept playing that piece and then when I'd played it like I think 15 or 20 times I'd realized that I'd been doing it for a while, and I realized that this was induced by a state of profound and indescribable happiness.

So last night, when I was dreaming about that giant swing, I mean, the feeling was indescribable, even though it was only a dream.

And, obviously, swinging on a ventilator would be quite dangerous, and if you did fascen that vent to the swing you'd better make sure it is SECURE, and when I mean secure, I mean VERY VERY secure.

When I woke up at around 04:30 this morning to turn off my feeding pump and to clean out my tube, I was in a state of utter happiness.

thank you for allowing em to share my dream with you, and God's blessings be with you all.

Here's a video of the fourth movement of this piece, and the version that I love, because it's slow.

My goodness, Isn't it beautiful???
https://www.youtube.com/watch?v=AINwmThUZo8&index=2&list=PLgSebdAnigO0KUn2_01X1AwvFY9_tGgFl

A few things that everybody needs to know about the LTV ventilator

As you've already read in a couple of blog posts back, I have a Pulmonetics LTV 1150 ventilator.

This ventilator is a portable Home ventilator that is also capable of being used in the ICU.

It's very pleasant to listen to it's drone as it's not too loud, or too quiet, and it provides me with smooth ventilation.

I am posting this blog post because there may be other people whether they might be a patient, or a parent of a child who is on this ventilator, and I want to explain a few things about this ventilator in hopes to help them if they are having issues with the ventilator.


This post is going to be very very long, so be warned.

Here I go droning on again.

Yeah, I know, I use the word drone quite a bit, as do I use the word wee quite a bit, for example, "He's a wee bit wheezy," or "During the wee hours of the morning, the patient desatted to 74% and the nurse came in to discover that He'd taken his oxygen off and was playing with the tubing."

I use other words quite a bit, but I have noticed I do use Wee and Drone a LOT.

LOL!

But anyhow, I'm getting off topic here.

I'd like to talk about a few things related to the LTV ventilator, and what might be the problems.

First I'd like to talk about the DISC/SENSE alarm.

There is an alarm on the ventilator known as a "DISC/SENSE," alarm.

This alarm could mean several things.

It's triggered by either a disconnection of the flow transducer cables that are connected to the ventilator circuit.

These are the two small tubes that you will find  on the side of the wye at the end of the circuit.

These essentially tell the ventilator when the patient's breathing, how much flow they're generating, the tidal volume that they are generating, or what volume is coming back to the ventilator after a machine or patient breath, and several other parameters.

These tubes may become unscrewed at the ventilator end, and even the slightest bit can induce a DISC/SENSE alarm.

Trust me.

I've had it happen to me.

I've connected a circuit, and gotten the dreaded "DISC/SENSE," alarm, and then I've traced the sense lines back from the wye to the ventilator to find that thel one of the lines were on slightly crooked, or  that one of them was not snug, and then once I fixed that, the alarm stopped!

It's very important that when you are going to attach these to the ventilator's flow transducer ports, that you sort of counter screw them, or counter turn them somewhat to the left, before you connect them to the transducers, and then you will notice that they screw themselves on when you do that.

You are not finished though.

You then need to tighten these the rest of the way,  until they are propperly secured onto the ventilator, but Not so tight that when it's time to remove them for a circuit change you can't get them off.

Then you have a problem, and it may in fact take hemostats to get these things off once you've done that, and you can actually break the plastic connectors at the end of these tubes.

This is best avoided by just getting them snug on the connections, and thennot cranking them as tight as you can get them.

These sensors must be snug, and on there straight, or you will get the dreaded  DISC/SENSE alarm.

Another issue that could cause the alarm to sound is the tiniest drop of water in the lines.

We're going to refer to these two transducers with the yellow and white color coded connections as sense lines from now on.

The smallest drop of water in the sense lines is going to confuse the ventilator, and do a couple of things.

One line being blocked will cause the ventilator to not give the breaths.

It will autocycle, and will give tiny breaths at upwards of  100-120 times per minute, but these breaths are not going to be enough to actually ventilate the patient.

This is a HUGE  problem, and must be solved immediately.

The other sense line, if obstructed will cause the ventilator to become confused to where It will not know when to stop delivering the breath, and so breaths will be stacked and this is also very very dangerous.

If condensation develops in the sense lines, you can simply press what is known as the "Manual Breath Button."

On the bottom portion of buttons, you will find this button over to the right, at the fifth button over.

It is to the left of the "Control Lock," button.

Two things are going to happen when you press this button.
1: The ventilator is going to administer an extra breath.

2: The ventilator will send what's known as a "Bolus," of air throughthese two sense lines and this will clear out the water in the tubing.

You might repeat this two to four times and then the DISC/SENSE alarm should stop.

This could also be caused by water in the exhalation valve sense line.

What I do to prevent so many DISC/SENSE alarms is something that I have found works for me, and that does not cause volume loss, pressure loss, or incorrect readings from the ventilator.

On the exhalation side of the ventilator,which on my Non-Heated wired ventilator circuit I have a long aerosol tube that You'd connect to a Large Volume Nebulizer, connected to this side, and I have an extra Humidification chamber that I use as a water trap.

On the other side of the trap,  or the water chamber, I have the section of the ventilator circuit that goes to the exhalation valve.

Now, on the side of my ventilator's pole stand, where the basketis that you hold stuff like the Extra charging cables, there's a little grasp that I put my tubing for the exhalation valve in, and It keeps it off the floor, and the exhalation valve is not hanging down to where a lot of water can develop in the tubing.

This keeps water that might get into the large tube that my exhalation valve is connected from getting into the valve, and I've found that now that I've done this, I can turn my  Heater up to the maximum setting.

That is the only setting I'm comfortable at.
Now I want to  inform you that my heater doesn't have a temp probe or a heated wire, so there's no way to precisely set the temperature.

It's a small dial, and so I have no idea what the temp is.


This  humidifier is more sutable for a CPAP or BiLevel machine and Not sutable for the ventilator patient, but It's what my DME has, so they don't have the exact heater where you set the precise temperature, so I just have to make do.

Turns out, I'm not the only patient that has that issue.

If you are wondering, my Heater is a Fisher & Paykel HC150!

Now, usually from the research I've found, you're not going to find this in use with a home vent circuit.

It's more likely to be used for a patient with a PAP therapy device who doesn't use  a built in humidifier.

But anyhow, if you happen to be a patient or a caregiver who got something like this thing for your ventilator, This blog post is certainly for you.

You might recall the nights you've woken  up to the alarm, and you've gone to troubleshoot, and when you picked up your exhalation valve, water was just almost pouring out, and this is a complicated fix, because if you tap it against something, you're going to dislodge the diaphragm, and that's a real pain to fix, and so your PEEP is not going to be maintained, and that could take hours to fix.

You have to shake the tubing, and hope the water comes out enough to stop the alarm.

I don't know, the manual breath button might fix this, but really, It's best not to have to press the manual breath button if you ask me because it does administer an extra breath, and it's usually safe, but could cause distress in the patient because of the extra breath that they did not initiate.

So now that I have a water trap in my circuit, and I have the exhalation valve mounted on the small grasp  as I will call it, the water trap will collect most of your condensation.

it's important to empty this water trap every single day, and to clean it as well.


There are other reasons for your DISC/SENSE alarm, but these are the main two.

Other reasons although rare could be a hole in the sense lines, or broken connectors.

The ventilator itself may be malfunctioning and the components that read the flow inside the vent may be malfunctioning.

If you suspect this, and have tried all your other options above, than you need to contact your DME to have them come out and evaluate the issue.



The next issue I would like to talk about is the top filter on the left of your ventilator.

If this filter needs to be cleaned whilst the ventilator is actually ventilating a patient, it's very important that when removing it, you be aware that there is a fan inside of this area and if you stick something in there and it touches that fan, your ventilator is going to give you the "Hardware Fault!"

Immediately, GET WHATEVER IS IN THERE OUT.

Turn off the ventilator, and then turn it back on, and HOPEFULLY, this alarm resolves.

When you do this, if the patient can breathe, they should be disconnected from the circuit and allowed to breathe, but if they have difficulties or cannot, your manual resuscitation bag is there for that reason, and should be used.

If the patient is on a Lot of PEEP for example 10cmH2O this bag shouldhave a PEEP valve connected to it to maintain that PEEP.

If you're not cleaning the filter and you  get a hardware fault, the first thing you do is look at this the filter and see if maybe big brother or sister of the baby had put something in there.

YOU MUST check this first, because if this is not removed, the ventilator is going to stop functioning, and you're going to get analarm that you won't be able to silence and you will then have to call the DME and they'll have to either resolve the issue, or possibly send the ventilator in for repair.

This is  avoidable.

Hardware fault may be induced by other reasons, but the main reason is something has touched that fan that's behind that filter.

If this happens and when you remove the object from the ventilator you're still getting a hardware fault, you need to switch to the back up ventilator immediately, and turn off the ventilator that's having this issue because otherwise the ventilator's going to be trying to run but it can't because of this hardware fault and this could damage the ventilator even worse.

In most instances once you get whatever is in the fan out the alarm will resolve and you can turn off the ventilator, and turn it back on and it will stop displaying the hardware fault, but in rare situations, the ventilator will need to be serviced.




The next issue I want to discuss with you is the ventilator's battery.

There are two types of external batteries for the ventilator.

There is what is known as the "Sprint Pack," which is  white and that runs for about three to four hours and it consists of two batteries.

There are two test buttons on these batteries and you can press these and lights will display, and depending on how many lights are displaying  will depend on how much battery that you have left in each of the batteries.

It is very important that this battery remains plugged into the wall when not in use.

It will last much longer if the battery is not left to discharge.

A lot of times, this battery will be connected to the backup/transport ventilator, and this will be connected to the wall outlet at all times.

There is also the big batteries which can usually power the ventilator for 8-10 hours and these should also be kept charged, and kept in a dry room.

The ventilator also has it's own internal battery, but this battery usually only lasts for like 30-45 minutes depending on the ventilator's settings, and the patient's respiratory demand.

it is very important that this internal battery only be used as a backup.

If you're out and you have used your external battery, this internal battery will be the emergency backup, and hopefully this will not be necessary, but if it is, you shouldbe prepared to manually ventilate the patient, because this battery does not last long.
You might also decide to use this battery in the tub room, or if you're just taking the patient outside for a few minuets, but never use this battery on a trip to the Dr's. or to the hospital, because it will not last you long.



The important thing about these batteries, especially the Sprint Pack is that these remain charging whenever they are not in use.

If you're going to store the backup/transport ventilator somewhere, you need to keep both the battery and the ventilator plugged in at all times.

Otherwise, your batteries will completely discharge, and this will become a problem when you have to use the ventilator.



The next thing I would like to talk to you about is something very important that might be confusing to somebody.

If you turn the ventilator off, like if your patient is getting off the ventilator for a short period, when you hold down the Standby button, the ventilator once powered off is going to sound a very loud alarm.

This signals that the ventilator has been powered off and I feel this alarm is very very important because in the event that somebody tries to turn off the ventilator the operator needs to know that the vent is off, and not ventilating.

To silence the alarm, you Press the "Silence/Reset," button.

Now, even when you have done this, you are going to note that the "VENT INOP," Light is still illuminated.

This is another important alert to alert you the caregiver, that the ventilator was recently turned off.

This will remain on for 10-15 minuets, and then it will turn off.


The next thing that might confuse some people who are new to the ventilator is the flashing alarm message even when the alarm had resolved and the audio alarm has ceased.

This is another very very important indicator that was built in the vent for a reason.

All right.

Scenario:

Baby Sean coughs and triggers the HIGH PRESSURE alarm.

All right.

Sean has coughed and now that he's no longer coughing the ventilator senses that the Inspiratory Pressure is back under the HIGH AIRWAY PRESSURE alarm limit.

The alarm has stopped sounding.

But then Sean's Mother comes into the room to see that the alarm is no longer sounding, but she sees the Red alarm Indicator, "HIGH PRESS," and it is flashing.

Why?

This is very important in that it has alerted Sean's mother that there was an alarm that did sound and even though the situation has self resolved when Sean stopped coughing, that alert is there to indicate that yes, at some point Sean did trigger this alarm.

So how is this alarm cleared?

it's simple.

You press the SILENCE/RESET alarm button, and then you will see the ventilator measured parameters rotating through each value once again.

Most ventilators have this function.

In the event that the Evita XL alarms after the alarm has resolved, the ventilator will still display the message in white letters so that the RT will see what alarm was triggered, and until that message is cleared, this will be displayed.

The Hamilton ventilators, and the Trilogy ventilators also have this function.

I feel that these features are very important in all ventilators.




All right.

Let's say that you are a nurse caring for a patient  on the LTV ventilator.

You might be asked to chart values such as the PIP, the MAP, the VTE, the I:E Ratio, and the actual Frequency.

Well, on the top of the ventilator's front panel, there is the message display screen where these values are continuously rotated through.

But what if you need to manually rotate through these to chart at your own pace.
Well, you can simply press the "SELECT," button and you can then manually review these settings, and can do this without having to rush to chart a value before the rotation continues to the next value.

The order is as follows!

F: which equals the Actual Frequency!

VTE: That is the exhaled Tidal Volume.

VE: That is the Minute Ventilation.

I:E This is your Inspiratory to Expiratory Ratio.

VCALC: This is the calculated flow that the ventilator calculates according to the Tidal Volume you set, and the Inspiratory Time!

In other words, this value will only appear if the patient is in VOLUME CONTROL ventilation.
If Sean was set to Pressure Control this value will not be available, and there will be no need to chart it.

Between the VCALC and the PIP, you might see messages that indicate that alarms are turned off, for example, "LMV ALARM OFF," or "HIGH F OFF," depending on whether any alarms are turned off.

PIP: This is your Peak Inspiratory Pressure.

MAP: This is  the reading for your MEAN AIRWAY PRESSURE.

PEEP: This is your actual Positive End Expiratory Pressure, or PEEP.

NOTE: Remember previously how I'd mentioned the painful task of fixing your exhalation valve if you tried to tap it to get the water out?

Well, if your baby is set at 10 of PEEP, and your ventilator is reading the PEEP as 2, That set PEEP is not being delivered, and THAT IS A BAD THING.

If the Low PEEP alarm is turned on,  It will certainly alarm.

Now, let's say that Sean's nurse is done charting, and wants to resume the rotation of parameters.

Well to do this, simply press the  "SELECT," button two times in rapid succession.

Now the rotation continues.


Another issue I want to discuss is the variation of parameters according to what is set, and what you get.

What you have set and what you get may be a wee bit off.

So, let's give some settings here, and we'll talk about this carefully.

We have Sean on a Respiratory Rate of 30, on a Tidal Volume of 95, on a Pressure Control of 18, which is dimmed out because we're not using Pressure control, an Inspiratory Time of 0.5, on a Pressure Support of 15, on a Sensitivity of 1, with a High Pressure Alarm Limit of 40, a Low Pressure Alarm limit of 4, and a Low Minute Ventilation Alarm of 0.1, and with  a set PEEP of 10!

All right, now usually the Low Pressure limit is not set below the PEEP, but sometiems in the Home Care Setting this happens.

All right.

Now, we've got Sean on his ventilator.

He's sleeping comfortably, and Occasionally might take some breaths, but let's say that for the most part, He's riding the ventilator.

All right.

So, the nurse is charting the ventilator settings, and the actual parameters.

The Tidal Volume that the ventilator reads may be somewhat different than the actual setting.

This depends on the Compliance, and the Resistance of the ventilator circuit, of Sean's trach tube, of his airways, and of his small lungs.

In other words, if Sean's nurse sees a VTE, of 86 instead of 95, this isn't too unusual.

Now if there is a huge variable in the VTE, for example, she sees a VTE of 30 or 40, there would definitely be cause for concern, and this should be immediately  checked out.

The PEEP may be a little bit off too, as well as the  PIP.

One or two cmH2O is not uncommon.

However, if the PEEP was set at 10cmH2O and Sean's nurse charts a PEEP of 1cmH2O there is definitely an issue and this MUST be checked out.

Of course, in most cases the High and Low PEEP alarms need to be active.



Another important function that I want to discuss are the two different locking functions.
If you notice, exactly to the left of that black rotary wheel there is a "CONTROL LOCK," button.

This is to lock the ventilator so that it cannot be accidentally adjusted, and so that nothing can be changed.

There are two levels of the  Control Lock.

The first one is the EASY lock.

If this was set in the internal menu then when the ventilator is locked, to unlock it you just simply press the lock button.

If the ventilator is in HARD UNLOCK, you will have to hold this button down for three seconds to unlock the ventilator.

If you are not sure what level is set in the Internal Menus, you can simply press the "CONTROL LOCK,"  button, and if the ventilator was locked when you pressed it, the ventilator will either unlock, and the green light on the button will go off, or you will see that light flash, and the message "LOCKED," will display in the message window that has your measurements and alarm indications displayed.

If the LED flashes and you see "LOCKED," when you press the "CONTROL LOCK," button, you will have to hold this button down for three seconds, and then the ventilator will be unlocked.

This locking function is there for safety.

If Sean's Big brother Aidan comes in to look at the ventilator and then tries to press buttons, the ventilator if locked will prevent any changes.

If children are in the house and there is a higher risk of setting changes there really should be a "HARD LOCK," programmed into the ventilator so that the risk of changes is reduced.

It's important to note that even when the ventilator is locked the Select button can still be used to manually view parameters, and to stop and restart the rotation of the parameters.

The alarm silence button is still functional as well.

At this point, I've covered several important things in regards to the Pulmonetics LTV ventilator, and I hope that this was helpful.

If anybody does have any questions you can comment and I will answer these questions.

In the future I can discuss other topics and at a point in time, this will occur, but I wanted to stress some very important things that I've thought of, and some that I've had issues with.

Well, mainly the DISC/SENSE alarm.

That was hard to resolve, but I give God praise for eventually helping me with this issue.

I'm very thankful.

One of the most important things to remember is to first look at the patient.

The ventilator could be going off saying "LOW PRESSURE," and that means that the pressure is lower than the set Low Airway Pressure Alarm limit.

It is Highly likely that this could be a disconnect, or a leak.

So if you look at the patient, and trace the circuit all the way to the machine, you can usually see where the disconnection is.

The baby could  have the whole circuit off and playing with it, or the large tubing could have popped out of the wye.

High Pressure alarms that sound but then quickly stop, are most likely a cough, or a forced exhalation.

You also MUST have a manual resuscitation bag, or better known as the Ambu Bag ready in the event that you cannot readily identify the problem.

If this happens, just take the ventilator circuit off, and bag the patient until somebody can identify the issue that is causing the alarms.

I hope this helps,  may God bless you and keep you, as well as all you come into contact with, including your family, your relatives, and your friends.


God's love is Perfect, and we should cherish that,and give our lives to him, fully devoting ourselves to glorifying him, and to being a witness to others about what He has done, is doing now, and what he will do for us, and will do for them when they accept them into their hearts.

Praise the Lord, and Give Thanks to him!

WARNING:

I'm about drone on about something very very very important to me, and this is very important that all read this, because it helped me, and It will help you.

What you are about to read is very very long but I'd really be so blessed if you read it.

Thank you, and God's blessings be with you, your families, your friends, and all that you come into contact with!

Wow.

Just to think.

When we're in pain, whether it be after an injury, or an operation, or whether we're suffering an ilness, even though we're possibly in what could be the most severe pain in our lives, one thing that helps is to praise God, and to listen to wonderful music.

Looking back, I find how much my Heavenly Father truly helped me.

The day was October 3rd, 2015 and I was recovering from a tracheostomy that was performed so that I could easily be mechanically ventilated at home.

This rendered me unable to speak because the swelling had to go down in my throat before they could use the special valve that was known as the Passy Muir Valve.

This special valve allows air into the trach, however the valve then closes off, and air goes up through the mouth and the nose.

This valve which was invented in the 1980s by David Muir, a Muscular dystrophy patient, on a ventilator," is perhaps the best speaking technology that allows trach patients to speak.

But during this time, of recovery, my only means of communication was with the use of my Notes App, on my Iphone 5C.
I would write down what I wanted to say, and then I'd show the nurses what I said, or whoever I was directing my statement to.

If I needed to be suctioned I wrote down on the Iphone, "I need to be suctioned."

If a nurse came into my room, I might greet them with a, "Nice to see ya my friend!"

Sometimes whilst i was listening to my wonderful wonderful classical music, They might ask me what piece i was listening to.

I would type the piece'sname and composer down.

For Example, "This Piece is Capriccio, BWV 992, On The DepartureOf His Beloved Brother," by Johann Sebastian Bach, in B Flat, and you are currently listening to the fourth movement out of six movements!"

I didn't write short.

If I needed to say something, I took time to write it down.


My Mother said that I could use short cuts for example, I could say something like, "Pain an 8 give me something for pain," Instead of what I would rather do which was drone the whole thing out something like this, "My pain is an eight out of ten, and I need something to be administered for the pain as soon as possible!"

I am not a guy that takes short cuts a lot.

But you know, I'll be honest with you.

Lying in that bed without any sedatives, I did not get much sleep, and on October the 3rd during the wee hours of the morning, my sleep deprivation was starting to make me feel agitated.

I was starting to hurt and was really nauseated.
I was started to get upset, and I felt like I wanted to cry!

It was around 03:00 in the wee hours.

So, I did what I know would help, which was silently sing praises to God, and  I prayed silently to god.

I prayed to God thanking him for the wonderful music that I had to listen to!

I prayed to God thanking him for the people who were going to work to their hardest to getme that LTV 1150 ventilator at home and that were going to see to it that I did not have to deal with the Trilogy vent!

I remember not just praying for myself.

I said to myself, "What will make me feel better is if I pray for everybody in the hospital.

So, I began my prayer.

I prayed for the patients in the Pulmonary ICu where I was staying.

I prayed for the nurses and Drs. as well as the RTs that were taking care of them.

I prayed for their families and I prayed that they would be given a special peace.

I prayed for the patients in the Cardiothoracic and the Cardiovascular intensive Care Unit.

I prayed for their care givers and their families.

I prayed for their  peace and their healing.

I prayed for the patients in the Neurosurgical and Neuro ICU, and I prayed that they'd have healing and peace.

I  prayed for their staff that were taking care of them.
I prayed especially for the babies in the NICU, and their families, especially their parents.

I remember this part of the prayer being very important to me.

In the NICU, It is just like a roller coaster.

One minuet, a baby can be doing just fine, and the next they can be desatting and their heart rate can begin tanking, or they can develop a horrible intestinal infection that is known as "Necrotizing Enterocolitis."

They can develop so many problems and sometimes the NICu and the PICu can be a place of sadness forthe families and the caregivers.

I prayed that these parents would have peace and that if any baby was having a rough time whether that be a bout of NEC, or an episode of Sepsis, or maybe there was a baby on  full VA ECMO with Pulmonary Hypertension who was not expected to survive the night.

I prayed that God would reverse whatever was going on, and that he would give comforting words to the parents and the whole families, and that God would give Guidance to the Nurses, the RTs, the Drs. and the whole staff on what they should do.

I prayed for the patients in the Pediatric Intensive Care Unit.

I prayed that God would speak to the parents and the families of these Children and that He'd speak to these Children and give them comforting words.

Some of them might not be able to understand what was going on, but you know, the Lord our God can speak to the heart, and he can comfort anybody.

I prayed for the  staff as well.

I especially prayed for the families, including their Mothers and their Fathers.

I've read hundreds of blogs and know how awful these families speak of the dreaded phone call that might come in the wee hours.

A mother and Father might be sleeping the night away after seeing their baby who was doing much better, and all the sudden the phone could ring and it could be the Nicu saying something, around the lines of, "Could you guys get up here As soon as possible?

Ethan's sats are decreasing, and we have him on 100% oxygen with the conventional vent.

We're going to have to switch him to the oscillator again I think, but you do really need to get up here, because he's really not doing good!"

Or something along the lines of "Jason's belly has swollen twice it's size and he's having apneas and bradies, and we're suspecting what we'd all have hoped to avoid.

I think we've got a case of NEC, and it looks like it's going to be a bad case, so if you could, you really do need to get to the hospital!"

There are several variations to this.

I know this  is bad enough, but now these parents are scared half to death, they've just been woken up, and they're about to drive in a motorized vehicle to the hospital in the dark, with their hearts pounding and their thoughts flying at hundreds of miles per second.

It's an experience I've never had, but when I read these stories, I know these kinds of experiences are scary, upsetting, very emotional, and are anything but pleasant.

These experiences are every parents worst nightmare!

I then remember praying for all the patients that were going to undergo operations that day.

Now it was a Saturday, so most operations would be emergencies if they took place on that day.

Some of these could include Operations on an Abdominal Aortic Aneurysm, operations to repair an Aortic Dissection, Operations to remove foreign bodies that somehow got where they weren't suppose to be, operations to perform other cardiac procedures, etc.

I prayed that God would guide the Surgeon's hands, and that he's speak to the families.

I then remember praying for the patients  in the Burn Unit.

The burn unit is a place where the worst of the worst come.

Accidental and Nonaccidental burns both come here.

Anything from a  cooking incident that resulted in boiling water being spilled on somebody, to a massive house fire.

Burns are like No other trauma, and the treatment that takes place once or twice daily for these patients is at times very grueling.

If you read the blog post on the Hubbard tank, you'd remember  how I explained the Tank Room, and what goes on there for the burn debridement.

I prayed however that God would especially be with the patients in the Burn unit and that He'd hold their hand during the tanking procedure, which would be very very grueling.

I prayed that god would give guidance to the burn  Nurses and Burn Physicians, and that he'd speak to the families of these burn patients.

It was at that  time in my prayer that It really hit me.

The Pulmonary ICU that I was in was in an old part of the hospital, and prior to this being the Pulmonary ICU, it was a Burn Unit.

That's why there was a heat lamp still above  me that I made use of essentially the whole time I was in the ICU.

But it hitme that the room that I was lying in could have very well housed some of the sickest burn patients several years before.

This feeling, I'll be quite honest was a rather sickening feeling, because lately in my research on burns, I have learned just how badly burns can actually be.
I remember lying there for several hours that morning during the wee hours, and I just remember passing my time awake by praying, and singing hymns silently.

I couldn'tspeak so I sang to God silently.

I praised God that I at least now had a trach where I could have better access to my airway, and where I could be ventilated easier.

There would be no more of having to put that mask onto my face that went to a BiLevel machine.

Ugh, those masks are bulky and can often be uncomfortable, and especially when you're on the machine 24/7 like I was at that time period.

But you know, I lied there and I thought of everything that I had to be thankful for and I prayed to God thanking him for it.

I remember how it felt sort of earry with my Mother gone and me being the only one in that room except for the nurses that came in every fiveor so minuetws to check on me.

But I spent that time with God, because I knew with him, that I was not alone.

This is what truly helped get me through the next several days where I didn't sleep much.

Morphine seemed to make hours drone on like days, and when I mean droned on, I mean droned on.

One hour seemed like 10.

I shut my eyes but sleep hardly came easily.

I listened to Bach, and so many other composers, and if I was not doing that, I was praying to God and singing to him silently.

It does not matter how much pain that you are in.

You can spend time with god and trust me, He's better than any Morphine, or Fentanyl.

Besides, I'd rather not take narcotics because they slow down the GI Tract, and give you the most depressing and grueling dreams that you can imagine.

Another thing that helped me was to imagine Jesus upon that cross.

You know, there is no pain that anybody will experience that will be anything even halfway near what Jesus Christ went through on that cross.

If he can stand up there on that cross, and he can ask his Father to forgive the ones who are killing him than God can help us get through any sort of pain that we have to go through.

that may be the pain from the Chirare Malformation repair, that I also underwent during my 28 day hospital stay.

That pain was horrendous.

That may be the neck pain after a tracheostomy.

That may in fact be the grueling pain of the debridement process that goes on in the Tank Room, or as it is often called, "The Tank."

That may be recovery from a cardiac operation, where your chest was split open and where you might have even been placed onto a cardiac bypassing machine.

That may be numerous illnesses.

But if you lie there and you give God the Praise for what he's done for you, and you think about the blessings that you do have and not the pain, You will be able to endure so much more.

I know this, because I've done it.

God can hold your hand and he can give you that strength that you need to get through the operation.

To get through the grueling pain, or to get through the nausea and vomiting.

To get through the awful feeling that Morphine gives you.

UGH, I hate narcotics with a passion.

God can give you what you need to get through so much.

All you have to do is to ask him, and to trust in him.

He never has, isn't now, and never will let you down.

So, when I'm lying there silently singing, "There's No Friend Like the Lowly Jesus," or "King Of My Life, I Crown Thee Now," or maybe even "All Creatures Of Our God And King," or maybe "It Is Well With My Soul," that time goes on from droning to flying.

The pain seems to go away.

The feeling of nausea becomes either  Nonexistant, or seems nonexistant.

God can do so many miraculous things, and if you will accept him  into your hearts, you will have the most profound experience.

I know I've droned on and droned on, but I enjoy this kind of droning, so get use to it.

LOL!

Thank you for listening to what I have to say, or reading it  any ways.

God's blessings be with you.

If I could bless one person today, it wouldmake me the happiest person.

My LTV 1150 ventilator!

With my massive interest in the medical field, I believe God has blessed me tremendously.

Being that I've spent my life undergoing procedures, operations, and so many other things, and been on and off pieces of equipment, I've had quite a bit of experience.

Not many people my age will drone on and on about the soothing sound that an oscillating ventilator makes, or the relaxing sound that my LTV 1150 ventilator makes as it breathes for me, or assists my breathing, if I initiate spontaneous/Assisted breaths.

Not many people will drone on and on about the Hubbard tank, and the aspects of burn management in the 80s VS what it is today.

I've been blessed to have the understanding of the medical field, and it's because of this, I give praise to God because now that I require a trach, and a ventilator, I can manage this stuff just fine.

I know that holding the Select button down on my LTV ventilator is going to get me into the Extended Functions Menu where I can adjust Alarm Volume, Apnea Interval time, Rise Time, Flow Termination, High and Low PEEP, and High Frequency alarms, as well as many many other parameters for my ventilator.

I also know that being that I don't have my own IPV Machine, I can do something like an IPV machine can do, but not at 100 to 300 breaths per minute.

IPV is short for Intrapulmonary Percussive Ventilation.

Essentially what it is, is it helps to loosen up my secretions with high frequency bursts of medication aerosolized medications, that is, into my lungs, to help me get the secretions where I can suction them.

My DME does noy supply this equipment and so what I do Is I connect my Nebulizer to my ventilator in line,and then, I Switch my ventilator to Pressure Control mode, and Increase my PEEP to get my Mean Airway Pressure up into the 20s and 30s and then I adjust my Pressure Control, to get a good percussive effect, and now the ventilator's essentially giving me a slow but obvious percussive treatment.

My ventilator goes up to 80 breaths per Minuet, and I'm very thankful that I have the LTV, and did not get a Trillogy ventilator, because it only goes up to 60 breaths per Minuet from what I have heard.

I perform my IPV, and then, I suction myself with the means of the In Line Suction system, and then I put Saline down the trach tube, and suction it out.

This helps Tremendously.

It takes titration during my IPV, and I perform this very carefully.

On my LTV ventilator, I've got my alarms set very carefully, and always adjust them according to the Pressures that I see when I'm on the ventilator.

I essentially do what you would see the Respiratory Therapists do in the hospital.

I've seen in some pictures, the LTV ventilator's High Pressure Alarm set at something extreme such as 60 or 65 and this is profoundly dangerous.

I've seen the Low Minute Volume alarm turned off in some cases, and this is all right, because in some situations, such as when the Passy Muir Valve is in line with the ventilator, you are going to get false alarms, because the air will be going out through the mouth, instead of returning through the ventilator, and so the Low Minute Volume Alarm will go off obviously, because the ventilator is administering Tidal Volume, and not seeing anything coming back.

I also love my LTV ventilator, because the settings are extremely easy to adjust, and so If a setting needs to be adjusted, I can just press the button below that setting, and use the rotary knob to adjust it, and then confirm that setting by pressing that button once again.

I'm so thankful that I had a say in the matter when I was in the hospital.

I made sure to express that they were not to come near me with a Trillogy, and that the LTV ventilator was my favorite ventilator, and had the most functions.

The Lord blessed me in that I did get the LTV.

This ventilator is the size of a Laptop, and even with it's small size, it is packed with functions.

It's essentially an ICU ventilator without the oxygen blender or the waveforms, yet if you have the correct cables and a monitor, you can plug this into the ventilator, and then you have waveforms, loops, and other very very important ventilator graphics.

I use a wheelchair that I have which was ordered for me a couple of years ago, and so I can put my LTV ventilator in this wheelchair, and I can wheel it around.

I do this with my backup ventilator.

I have one that is beside my bedside that's on a mobile ventilator stand, and I also have the backup one which once loaded up in my wheelchair is easy to move around whilst it's connected to me.

It's not an uncommon seen to see me at the piano, playing Bach pieces whilst attached to my ventilator.

I'd never been able to find any videos on YouTube of a person who's a ventilator user playing the piano.

But I put my video up there a while back, and that was the Video I conducted for Aaron.

He's the boy with Trisomy 18 that I have talked to you a lot about.


A very special boy who has become very special to me.


My LTV ventilator is a turbine driven ventilator, so sometimes when the flow increases in the ventilator, the pitch will increase, and so my Mom says that it sounds almost like a hearing aid does sometimes when it squeaks.

My Mom, when I explained to her what I did during my IPV, thought that this was extremely interesting.

I find it very comfortable.

I find high frequencies very comforting to me, and one night fell asleep during an IPV treatment, and didn't wake up until a few hours into the wee hours of the morning, when Mom came into my room to see my rate at 80 breaths Per Minuet, and then, I turned it down.

It was very comforting though, but still.
The LTV ventilator has this white device that connects to the power cable, and it is known as the Sprint Pack.

This consists of two batteries that power my ventilator for several hours.

I also have a large black  battery that I believe could power the ventilator for 8 to 10 hours depending on my settings, and  how much flow the machineneeds to deliver.

Older home ventilators like the LP10 ventilator did not have the option of Pressure Support, and so, in between machine administered breaths, if the patient were in SIMV mode, they were going to have to breathe against the ventilator's circuit, and the artificial airway, which is most cases would be a tracheostomy.

This was obviously hard, because whenever they were not receiving the ventilator administered breaths, they did not get flow when they breathed in.

Now with pressure support, the patient gets some assistance to help them generate a large Tidal Volume.


My Pressure Support level is set at 15cmH2O and my PEEP is set at 10cmH2O and so on the recent LTV ventilators, which have internal PEEP, this would be Pressure Support in addition to the PEEP setting.

10 of PEEP, plus the 15 of Pressure Support is 25cmH2O of Peak Inspiratory Pressure Total!

Every day, I thank the Lord for helping me get this LTV ventilator.

I've heard the Trillogy ventilator is nice, because it is quiet, but some patients do not tolerate it well, and also, it's essentially a very very fancy BiPAP machine.

Listen.

If a patient has a trach, you need to connect them to a ventilator.

Not a BiPAP machine, although, BiPAP is just a Trademark name from Respironics, and essentially it's BiLevel Positive Airway Pressure.

Well, a ventilator in Pressure Control, is going to administer two levels of Pressure.
One for inspiration, and one for Exhalation, which is going to be your PEEP.

PEEP Equals Positive End Expiratory Pressure.

But also, the LTV has more functions than the Trillogy, and so I was profoundly greatful when I saw the thing arriving in my hospital room, and said in my head, "Thank you, Dear Jesus For This wonderful Blessing!"

Thank you all, for listening to me rant on about this wonderful ventilator, and may God's blessings be with you all!