An answered Prayer, results in a MASSIVE EVENT X 3

As you all know, on October the 2nd, 2015, I would undergo my tracheostomy which has changed my life substantially!! Well In medical literature patients with  a trach cannot go swimming. But then again, in medical literature a lot of things are said to be true, however when the Heavenly father brings on divine intervention, ANYTHING is possible. To start this story, I want to say, "On July 10, 2018 two years exactly to the day I flew a professional drone owned by a person named Jason, well two years later an even bigger event happened. I WITH MY FRIENDS HEATHER, AND SAMMY, went swimming. Now my version of swimming is sitting, and relaxing in a pool. I don't exactly swim per say, but  I WADE in the water, standing/sitting. 

   Heather Got an inflatable pool that's a wee bit over three feet high, and 15X36 wide!  Well, the top part inflates, but the only thing keeping it high is the water, otherwise, it'd fall to the ground. BEST OF ALL, this pool has a pump, and It has an awesome sound. Do you all remember the era back in the end of 2015 and most of 2016 when all I droned on about was the Hubbard tank? That was t he large stainless steel tank commonly used to treat burned pat ients back in the 70s, 80s, and some in t he 90s and used to rehabilitate polio patients in the 40s, and the 50s. This tank if you remember has a turbine based whirlpool, and often had a lift, to place patients into, and remove them out of the tank. Well, the main fascination I had with the tank was the turbine, and all of the mechanical aspects of the tank. Well this's essentially the same way with pools. for many years I've  had a facination with the way a pool's circulatory system works. Now, what in the world do I mean by circulatory system? A pool you could say almost has a heart, but not literally. It has a pump with a big motor, that goes to the pool, and from the pool via pipes, or in Heather's case as you'll learn HOSES. it removes water from the pool, ciculates it through a filter inside of the pump, and then shoots it back into the pool via a device known as a return jet. In Heather's pool there only needs to be one return jet, and not more, however, in the case of a full blown professional athletic swimming pool, there needs to be numerous pipes, and numerous jets. When I first got my trach, I was thinking my days of sitting in a pool with return jets were over with, and I'd never be able to get into a pool again. THANKS TO Heather, and Sammy, my prayers were answered of being able to swim once again, and I hve been to her pool three times. I remember the week of the event. It was all I could think about. I couldn't stop droning on about the swimming pool pump, and about seeing the pump. I listened to the Intex Easy Set pool set up, and operation video probably over 100 times, I thought about the pool,  and flooded heather with Messages about the pool, and It's pump. It's all Mom heard about that whole week before, and especially the whole day before it happened. On the morning of the event, I shot out of bed, deflated my cuff on my ventilator, removing the monitors, and my vest as well as my feeding bag from the pump, and as soon as my cuff was deflated, I shouted out, "TODAY IS THE BIG DAY!!! I AM GOING SWIMMING!!!!!" I quickly cleaned out my tubea fter taking my medicine, and then got everything else done in my morning routine. And then Heather came, and just as she expected, I was through the roof with excitement. The sky was clear, and the sun was out. I remember as I was in Heather's car shouting out "I'm on Sunshine Mountain!" As you'll learn in this blog post, and in future blog posts I really enjoy songs like "Climb, Climb Up Sunshine Mountain," "Whisper A Prayer," "Who Built The Ark," "Zacchaeus," and "Heavenly Sunshine!" I remember on the way to her house, I kept saying, "Are We There Yet?" LOL I probably asked that five times or more. Anyhow, I remember when we got there, I changed and then I got ready as you would when getting into a pool, whether that be to swim, or in my case to sit, and enjoy myself. "Praise The Lord!" I shouted as I was walking out to the pool. I saw the Intex pump sitting by the pool not powered on yet. I was going to prime the pump before I got into the pool. Heather allowed me to do this each time I've come and the first time, we uploaded a video of me priming the pump. To do this, the pump must be turned off, and you must unscrew a small valve that is on the top to release air, and you hold it in an unscrewed position until you feel water coming out, and then the pump valve is closed right before the pump is powered on. For this first procedure, Sammy was coming out, and held his position by the outlet in which the pump cord is connected. After I primed the pump, he would turn on the pump by simply plugging in the power cable to the outlet. The YouTube video was now going on, and I explained what I would be doing, and then proceeded to do it. After I placed my hand tightly around the unscrewable valve, I slowly unscrewed it, listening first for the air, and then the water, and as soon as water began to come fourth out of the unscrewed valve, I screwed the valve closed hand tight, and confirmed the priming procedure was complete, and after I confirmed this, Heather informed Sammy that the pool pump could now be started up, at which time It was. The next step was for Heather and Sammy to enter the pool in preparation for my entrance. I listened carefully as I was instrected of the six step ladder three steps up the ladder, and then I'd descend into the pool via means of the  three steps down, and then I'd be in the pool. To sum up the plan, I'd get into the pool, stand beside, or rather in front of the return jet, and then a float with two handles, and a seat would be used to allow me to sit in the pool.    Once heather and Sammy entered the pool, I began my entrance into the pool, and began after slowly going downwards, I got use to t he cold water, and before I knew it, I was standing in a swimming pool. As I stood in the pool It hit me. MY PRAYER HAD BEEN ANSWERED, AND I WAS IN THE MIDST OF A PROFOUND BLESSING! I was stinding there in a pool with my Passy Muir valve, off the vent, breathing in the fresh air, and as I stood there I shouted out once again, "I'M ON SUNSHINE MOUNTAIN!!!!!!" And to me, in my view, I was on sunshine mountain. I was ECSTATIC!! I screamed with joy as loud as my lungs and my passy muir speaking valve would allow me to scream. I found the return jet, and stood right in front of it, with my left hand almost up against it, but not obstructing the flow. Doing that would increase the circuitry pressure inside of the pump, and could ruin it. I simply placed my hand up to the jet to feel the flow, and it was a pretty good  flow. I was use to the water and now it was time!!! DRUM ROLE PLEASE!!! Imaginary drum roll starts up in my head, as the suspense is real!! I now announce that it was time to sit down on the float device, and I did. So now, I was in the pool, with a trach covered via the Passy Muir Valve, so I could speak/sing, etc. I was sitting on the float, in t he water, and I was in the midst of the blessing that is an answered prayer! It was happening then and there. We had a trach tye and it's one of those old types of trach ties and we  tied that to the handle of the float, and the other end of the t ie to the ladder on the pool, as I had instructed them to. This was so that I could  be up against the return jet. I wanted to be right beside the flow, so I could feel it. I had some awesome sun glasses on for a bit, but then I got tired of them, because I wanted to see the pool clearly, and to look out at the pump sitting on the ground beside the pool. I sat there in that pool shouting with joy, and praising the Lord for what had happened. I was ECSTATIC!! May I say this again? I WAS ECSTATIC!!!!  After a while, Heather and I performed another video, us both singing, "Climb, Climb Up Sunshine Mountain!" Heather has such an awesome voice!! After that, we untied the float, as I wanted to float with the current that was being induced by the pool pump. doing this was EPIC!! After this, I sat there for a bit, as the current floated me, and as Heather and Sammy watched things very VERY carefully. They watched things exactly like a Perfusionist watches an ECMO pump, or as an anesthesiologist watches their patient under anesthesia, monitoring, and ready to take action the second they even thought things could be going wrong, which NOTHING EVER DID!! Finally, it was time to get out, and so we got out of the pool, and I sat down by the pool pump, singing "Whisper A Prayer," quietly, and extremely happy! This is proof that God does hear our prayers, and he always answers them. sometimes not in the way we want, but he has our best interest in mind.   

I've been back to the pool twice since the first time, the second time in the pool, I performed "Whisper A Prayer!"   The third time, I performed "Who Built The Ark?" I tell you my friends, THREE TIMES, I've been in that pool, priming the pump each time, and singing of god's goodness. Three times, I've experienced the answered prayer, and three times I've sat there thanking god for his wonderful love, and just so Grateful that I was able to experience the pool again.

   This is my call to you my friends. If there's something you request, and something you desire, seek, and you shall recieve. Ask the Lord in prayer, because He hears you, and wants to help you!!

THANK YOU, may God bless you, and keep you, and REMEMBER!

ONLY HE, can love you perfectly!!!!

I haven't posted in a LOOOONG TIME!

Hello everybody!

You know, I was sitting here at my computer not doing much, just thinking about a Hubbard tank, and other things, and then I remembered that I had a blog, and then thought, "Oh wow, I have not posted in it in a VERY, VERY long time! OOOOOOOPS!

   So much  has happened to  me in the last year. So many blessings in life, and you know, I had not even thought about the fact that I had a blog, and had totally forgotten. 

This last couple of years have been great, with many many wonderful times, and a few sad times. My Dad passed away last august, and I miss him very much. He was an absolutely wonderful man, and I miss him, but am happy that he is not suffering at all. Dad is my HERO!


    In other words, since I last posted, I've gotten a new feeding pump, and last May of this year, I obtained a circuit support arm for my ventilator, which is now mounted on the back of the ventilator cart, and essentially it's a stainless steel arm which has a couple of areas to adjust it's angle, and the hook position. The arm holds my circuitry up, so that it does not pull on my trach, and let me be honest with you, that thing has helped MASSIVELY!! I also have a Vibracare G5 Percussor, and have been using my High Frequency Chest Wall Oscillatory Vest during the night, ALL NIGHT  to help me with oxygenation, and with ventilation as well. Sort of the way it works with a High Frequency Oscillating Ventilator, or HFOV, which is a mode of ventilation that is used in the hospital. I have since started using that, now gotten down to only 0.5 L/min of oxygen, and where my PEEP was as high as 10, it's now only 5, and this is a HUGE Improvement. Not only that, but my rate on my ventilator which had been 30 Breaths Per Minute is now at 20, and this is something I never thought would happen, because of what was very high respiratory requirements with the ventilator.

   Many wonderfully wonderful things have happened with my life in the last year, and I am Back to post more
ONE HUGE EVENT that has been happening, one massive blessing, will have to wait until the next blog post, because I want a whole blog post just about the event.

THAT IS HOW SPECIAL IT IS TO ME, so please, STAY TUNED!

May God bless you, and Keep you, and REMEMBER, ONLY HE CAN LOVE YOU PERFECTLY!!

What's this whole thing about Isle Au Haut?

Hello my friends.

I'm hoping and praying that you're doing well.
It's spelling might cause some confusion, because It's spelled differently than what it sounds like when you say it. In fact, some people when I first talk abot it think I'm talkin about  Idaho.

But I'm not saying Idaho. But don't be alarmed, because when I first heard what I'm gonna talk about Bach in 2004 I first thought I was hearing the word Idaho, but I wasn't, and found this out 12 years later. Idaho, and  Isle Au Haut are two different words, and two totally different places in the  U.S.!!!  So now where've I gotten the name for my piece I called "The yellow Fields of Isle Au Haut!!!!!?"

First of all, this piece i composed is in B Flat Major, and It reminds me of a walk in beautiful yellow fields.

But where did even hear about Isle Au Haut in the First place, and why is it taking me so long to get to the point? Well I know why it's taking me so long, and that's because I'm in my cycle of droning on and droning on, and droning on, and droning on.

But there's this very very beautiful song by Gordon Bock called the "Isle Au Haut Lullaby!!" Let me tell you, It's very very beautiful!!  You really really should listen to it because it's so beautiful!!

But anyways, I heard that song first in 2004 and that's a long story in itself which I'm gonna drone on about in another post cause it requires lots and lots of droning about the days when I only had one nostril and when I had many reconstructive surgeries in front of me, and it was certainly before I got my trach.

But I'll get to that in a blog post especially for that, cause sometimes if you drone on about something you just need your blog post to be on that discussion, because of the  heavy amounts of droning that go on.

When I first heard this song in 2004 in the wee hours of what I think was a Monday morning, It was when I was recovering from a sinus infection that as they always did at the time went down in my chest and this one actually didn't end up in Pneumonia, but the Chest X-Ray revealed some Infiltration, and atelectasis, and  I had quite the road with that battle, but at the time I heard this song, I was starting to really recover.

My breathing treatments had started working, and for that I was thankful.

But in the chorus the song goes like this.

"When You See Old Isle Au Haut, Rising in the Dawn, You will play in Yellow Fields, In the Morning Sun."

Now I've always seen images when I heard music, and plus I have Synesthesia, which is another blog posts in itself but the beautiful picture I pictured Bach then was something that I just can't describe.

Finding this song, the same version twelve years later last year on my computer from the same CD, well no doubt, when I read the title, and was hearing it, it just clicked, and I knew where I was goin.

I remember so vividly the joy I felt, and even though I was on my vent, I silently let out a scream.

The  picture this song paints in my head is something I can't describe.

Doing some research I've discovered that Isle Au Haut is in Maine.
I still haven't actually seen where these yellow fields are, but when I hear this beautiful song, what I picture is indescribable.

So now, one morning at my CGP700 Keyboard, I composed a piece in B Flat Major called, "The Yellow Fields Of Isle Au Haut," and in my head it takes you through a walk in a very very beautiful yellow field and  in fact It takes you through a 24 hour period of walking during the day, and then resting at night when the moon is shining high in the sky and there is a warm moist wind that blows gently.

Besides I love Moisture.

LOL!!

It's so good for the airways, and for the lungs, but that's not the point.

If you haven't heard this song, check it out on YouTube, and trust me, if you see music in the way I do, You'll definitely see somethng indescribably beautiful!!

Honestly, I could keep droning on, but the point is, I see music in such a special way. Such an unconventional way.

I've got an unconventional taste for music, and when I hear it, I see it in such a way that words can't describe.

My Synesthesia has a big part in that, but It's really just my taste for music.

Thank you for listening to another droning blog post.

In the future, you'll definitely hear about Isle Au Haut more, and other topics related to yellow fields, and beautiful stuff like that, that bring us Bach to so many many special things about life, and about music.

May God bless you, and REMEMBER!!!

ONLY HE, can Love you PERFECTLY!!!!

The Small harpsichord Concert and the Heated Wire humidifier!

Last year, I ended a post with a Slight Possibility that I might get a heated Wire Humidifier.

That next day, the DME was scheduled to come, and to come, and and this was about 14:00 when i'd already be home.

I went out with Heather, and we met Edie at the University, and I played for about 40 minutes at the harpsichord  and well Heather knew that this was happening, however, Edie had no idea what I'd done and had no idea until It happened.

In fact my first public announcement was on video, and that was the first time Edie had heard it.

I kept Heather informed my small indicators to her when the camera was coming out.

Edie had no idea that I'd composed a Minuet for her Son Christopher.
By the time Edie was hearing about the piece was when video was running, and I was  announcing the piece right before I played it.

By this time, the dry air from the HME was so bad I could hardly talk, however I talked a little about Edie, and Christopher, and how special they all were to me.

And then I played Christopher's Minuet in E Flat Major.

The piece I'd been composing silently the previous Tuesday whilst  I was swinging.

Yeah, You probably already know I LOVE to swing.

Heather and I were swinging, and I was silently composing this piece in my head fixin to play it on my keyboard which was at home.

Heather had no idea though, and this was how it'd stay until the Tuesday after.

So, after this harpsichord concert, Edie, Heather and I went out to get something to drink.



And, whilst I was hiding my own little secret about Christopher's Minuet until I revealed it to Edie on camera, well they had something I did not know about and didn't know about until we were about to enter the University Music Department.

Well, Edie had a Friend who's name was Jason and this person had a Drone.

Not just a little drone, but a full blown drone and well I remember  Heather and Edie Talking on the phone right before Edie got there, and I remember Heather saying, "No, I didn't tell him yet."

I thought she was talking about telling one of her other friends about something, but had no idea she was referring to me, and something I was going to hear very very shortly.

No doubt, I certainly put two and two together when I was fixing to enter the university, because well I found out the wonderful news that this person who had a drone had learned aboutme from Edie.

And yeah, Jason was gonna let me fly the drone.

To say I was ecstatic, was an under statement.

I screamed as loud as I  could on my vent, which was not very loud, but in my head, inside my heart, I was screaming very very very very loud.
Within a month, and a few days, I would certainly be standing in a school parking lot flying a drone.

It happened on July the 10th.

But I've gotta get through a few blog posts before I get to that, so that'll come soon.

but anyhow, after we went out to have a drink, I was tired, so I bid Edie a Good bye, and then after that,  Heather and I went home to Clean up my room for the arrival of what I was thinking at the time was a slight possibility of getting a heated wire Humidifier.

I wasn't holding my breath at the time, still expecting to be sleeping on the old HC150 which obviously now is history.

The HC150  is a thing of the past.

It's no more in my world.

The former DME took it soon after the new DME came to fix things.

But any ways, after we cleaned up my room, and I removed my suit, I lied down very tired.

I dozed on and off, dreaming about what I was hoping would soon be my MR730 heated wire Humidifier.

And then Angie came in, and I knew from there on out, things were gonna change, and they were gonna change because our Heavenly Father was performing a miracle, and I was about to see the old HC150 going bye bye as well as the old LTV 1150, the old Nonin 7500, the old Devilbiss Suction machine, the Old stand for the old vent, and a lot of other things.

But Angie and I have become very very great friends.

So she arrived, and set me up.

I connected the circuit with the heated wire humidifier, and she brought a stand Bach to my house for the LTV ventilator.

And It's whilst we were explaining my interest in the medical field, and I was droning on as I always do about something along the lines of HFOV, and Inhailed Nitric Oxide, well It's whilst Dad was talking about what Happened to his hospital bed when he was admitted in the year of 2010 and it's whilst I was talking about my love for medical equipment that Angie made a statement that has  so much meaning to it, as it's helped me come a looooooooooong ways.

She said, "Well if you want stuff to play with, Let me know, and I'll bring you stuff to play with!!"

It's something along the lines of that, that to this day is why I have a SmartMonitor 2, and a ResMed Astral Ventilator, and why I've played with a Trilogy 100 ventilator, and now my room is filled with stuff which has turned out to help me with my breathing.

She planned on coming Bach Next Tuesday evening, and I was going to text her.

Several texts later, and droning ons later, resulted in an old cough assist, along witha Vest machine with hoses, a Small pulse oximeter, and a Healthdyne 930 being brought into my room where they still remain as of this post.

And with this new DME, you're never gonna guess what pulse oximeter I have.

The old Nonin 7500 pulse ox is now at the old DME place somewhere I know where not, but I CARE NOT WHERE IT IS!!

Now in my room, sits a Masimo Radical eight Pulse Oximeter and this thing as you  well know from me droning on about it, it truly wonderful.

It's special to me.

But now I test equipment out that other families state isn't working, and I've found a few issues, and now hopefully they're fixed.

You see, the DME doesn't have time to test all that equipment. She's very very very busy, and so if I can help test equipment for her, then let me tell you, I AM GONNA DO THAT!

WORDS DO NOTHING TO DESCRIBE MY GREATFULNESS ABOUT THIS, and how much it means to me.

So one week later, one week, and two days later after getting all that equipment, A SmartMonitor 2 by Respironics Arrives at my door whilst I'm listening to "Capriccio, BWV 992," with my headphones rocking Bach and Fourth to the Music, then I hear a knock on my window, and it's my awesome Hero Angie with the monitor.

When I realized what was happening, I could have screamed at the top of my lungs I was so happy.

I could have fainted right there I was ecstatic with such joy it was very very overwhelming.

Yeah, you don't need to be an infant to hook yourself up to one of these things.

Trust me.

It works on adults too.

I know this, because well I'm hooked up to it at night, and during the day, and it monitors me perfectly, and has helped  save my life a few times.

We've got so much to talk about where I suddenly left off last year.

More blog posts are soon to come, and  soon to come very very often.

You would not believe how wonderful last year was, and how this year is already starting to come with blessing after blessing.

It's all to come in blog posts.

But for a start, imagine the year starting with the word I'm gonna get to fly another little drone when the Weather warms, and  not only this, but well the owner of this drone, who's name is John, he's got music equipment, and he's loaded with awesomeness I'm gonna be entering head first.
Here's something to know.

If you ever see somebody flying a drone, singing "Thanks a Lot," by Raffi, or you catch somebody singing about Isle Au haut while he's in the midst of flying a drone.

That's me.

That is me.

Peter Johann. Foster.

I'm a dronist with a Doctorate in droning.

You should've seen me the day I was playin at heather's House playing on Sammy's PS Four, singing "Thanks A Lot!!!"

LOL!!!

I had to have been a sight.

Heather went outside to do something.

I don't know what, but that day I was real happy.

But if you ever see somebody flying a drone singing, chances are it's probably me doing it.

LOL!!!

In other words, to make this very very very very long story short, I've got another drone in the future.

And let me tell you, I think about it all the time.

I picture myself flying that drone, droning on about yellow fields, and about Isle Au Haut.

That's all coming in blog posts, and yeah, you'll get lots of droning, as I'm known to drone on, and drone on, and drone on, and drone on!

And after that's completed, I drone on, and drone on, and drone on, and drone on, some more.

And then that just keeps on going and goingand going and going.

This blog post is huuuuuuuuuuge I know, but chances are, you'll see more huuuuuuuuuuuuuuuge blog posts and this might end up being such a tiny blog post compaired to what you might see in the future.

You never know about me.

I've got so much to drone on about, like concerts, and Harpsichords, and what happened one day when I just got home from church.

And what happened on the 14th of  June of Last year which was a Tuesday.

But for now Let's end it with this.

God does amazing things, he works in the most amazing of ways, and he does so many wonderful things for us, and we need to draw closer and closer and closer and closer to him, and teach others about Him, and his new mercies.

We need to show kindness to others, and let them know they have a savior that they can ask to come into their hearts.

If you've been bombarded with  blessing after blessing after blessing, after blessing, like bullets raining from a machine gun, then you'll know about the Lord, and what he has done, is doing now, and will always do for those who serve him.

You'll know about what it truly means to serve a True God that brings goodness, peace, and love to all his faithful servants.

You'll know what a mighty God that we all have.

May God bless you.

REMEMBER, ONLY HE, can love you PERFECTLY!!!

Gne away is the Hubbard tank Interest

Last year, you all heard about Hubbard tanks so much.

I was known to tank people, and what that meand was sending texts containing the word Hubbard tank hundreds to thousands of times.

LITERALLY!

I've done it a lot to people.

Now days, you hardly ever hear the word Hubbard unless I'm talking about the interest I use to have, or I'm showing you pictures of my time at the University last march the 8th when I saw a Hubbard tank on a Tuesday morning.

Now days, you still hear me drone on about drones, and musical mobiles, but now guess what has transpired  since then.

The Croup tent or commonly called an Oxygen Tent, an Oxygen Mist tent, an Ohio Tent, a Croupette tent, a Mist tent, or other various names.

These things are not used nearly as much as they use to be, but they are still used somewhat in hospitals.

I've always had a massive interest in the medical field, so that's why I drone on about many topics like HFOV, HFCWO, HFJV, APRV, ARDS, CLRT, etc.

However,well a croup tent is something that's  really gone out of favor because of the high risk for transmission of infection, and so they're not as common as they were Bach then, but then they're still used in some hospitals.

Yeah, I know what I did.

I replaced the word Back with Bach.

I do it all of the time, and I do iton purpose too, because I love doing that, and because well I can do it.

LOL, I do it all of the time.

A croup tent, is a large plastic tent that contains a compressor that supplies cold moist air and in some cases oxygen to patients who have the croup, or who might have underwent oral, or airway surgery.


I was in one when I was very ver little, but all I remember was the hissing, and the noise of the plastic when It was adjusted, or when they opened the croup tent to talk to me.

I can remember the hissing noise, however I don't think they understood the question I was trying to ask which was "What is that noise?"

They all  thought I was talking about the plastic noise, but NO, I wanted to know exactly what was makingthe HISSING noise.

I've never seen a croup tent up close, much less gotten in one knowing what all the components were, but that will all be changing very soon.

My friend Angie who is an RT from my medical supply compnay has talked to a hospital that is about 40 or so miles away from where I live, and well I'm gonna get to not only see a croup tent, but help set it up, and then not only that, I'm getting inside the thing, and will experience what It's like to be inside one, and to actually remember it, considering this happened about 20 years ago when I was inside one, and I don't remember anything to be of use to me.

I'm very very excited about this.

There are some other events coming in the pipe line as well, and these are going to be discussed.

Tomorrow, I'm gonna start  sorting out what I have not discussed since last year.

I've flown drones, had concerts, gotten newmachines,  gotten my hands on a Trilogy ventilator, and now an Astral ventilator which is all going to be discussed very very soon with you all.

Not only this, but well I've got a lot of new compositions that've come fourth since last year's post which was left at a really shocking ending of might be getting a heated wire humidifier, and bla bla bla.

For some unknown and really  unexcusable reason, I suddenly stopped posting.

No real reason, so I don't know why I did, but the days of no posts are over.

I've got quite a bit of droning that has to be done, and make no mistake about this, will be done.

Thank you for reading my Blog Posts, may God bless you, and keep you, and REMEMBER!

ONLY HE, CAN LOVE YOU PERFECTLY!

A very long time, with No posts, with no reason not to post, and so much happening in between Bach then, and now!

Holy Cow!!! It's been MONTHS since I've posted. For some weird reason, I have stopped posting since Last MAY I believe!!! There was really no reason NOT to post, and I can't for the likes of me really give reason to why no posts in MONTHS. Considering, many many many many things have happened since the last time I've posted!! So many things that I have lost count!! So many things, I'm gonna have to post in several posts about things that happened, because they were not just little things! They were VERY VERY BIG things, and VERY VERY BIG BLESSINGS!! Talking about big things, Here's some examples of what's happened.

NOW equipped with a heated wire humidifier, Both an MR730, and MR850, now equipped with many many other pieces of equipment like a cough assist, a Vest Airway Clearance System, a Masimo Radical 8 Pulse oximeter,  a SmartMonitor2 Apnea Monitor, and a drone that does not work, but that I nmed Aedan Christopher!! And that's not it!! LOL!!

And talking about harpsichords again? Yeah, I'm still droning on about classical music!!! ALL THE TIME!!!! But well last Year, on a Saturday in September, guess who got to have a full blown Harpsichord concert!! Yeah, I  give so much thanks to God when I tell you I was able to have a full blown harpsichord concert at the University!!!

And then green drone I got to see fly, and fly a wee bit at Heather's House last May, well ummmmm, that's not the only drone I've flown!!! NO WAY, You wouldn't believe what happened on July 10th of the year 2016 and two days earlier than expected.

I'll never forget that awesome day after I'd come home from church!!!! Guess what!!!!! 

Well You'll hear about that in a post soon!!!! 

There's so much more that's happened, and so much more that's happening.

Interest wise, things have changed as well!! Now instead of droning on about Hubbard tanks, I'm droning on about Croup tents!! What in the world are those things? Well you're gonna learn about that too, and especially now that I'm gonna be seeing one soon, setting it up, and GETTING INSIDE!!! Yeah, there's going to be video, and pictures!!!!

And now where did I get about Yellow Fields of  Isle Au Haut?

Well you're gonna really hear bout that as well!! As that'll be a long and droning story coming in the future!!

But I've got so much to discuss. So much to drone on about!! BUT HEY, That's OK, because I'm a Dronist, with a Doctorate in Droning!!! I drone on about this, and Drone on about that. And drone on all day, and I Drone on all night. I drone on in my sleep.

And Yeah, these next several posts will definitely be posts where I drone on, and drone on,and drone on, and drone on, because, well that is what I do!!

But for now, This is me getting Back, or as I now Put it with my friends, getting BACH to posting!!

LOL!!

May God bless you, and Keep you.

REMEMBER, ONLY HE, CAN LOVE YOU PERFECTLY!!

 

Possible Heated Wire Setup but just a slight possibility right now!

Well, last night as you could tell, I wasn't feeling well. I was up most of the night again with mucous plugs, and for some reason my stomach didn't take too well of the food going through the pump throughout the night, and well My stomach was hurting really severely this morning. Today has been a rather quiet day with a lot of mucous plugging and me sleeping on and off throughout the day.

If you read my Facebook post last night, I mentioned that I really needed prayers, because there's a slight possibility I might be getting a Heated Wire Setup. A medical company near where I live is going to come tomorrow with an LTV 1150 and a Fisher & Paykel MR730 Humidifier which is really a nice Heated Humidifier, because not only will It have a Heated Wire, but also, I can adjust the settings, unlike on an MR850 which has two modes, one for Non-Invasive, and the other for Invasive, and that's it. I would rather have an older model if it means I can have control over the temperature of the heating wire, and the temperature of the water in the chamber. Tomorrow, we're just going to evaluate what this new company can provide me, like whether they would be able to provide me with an extra battery, two ventilators, whether ordering supplies would be easy, or whether It would be an extremely hard, if not ompossible process, and whether they could provide my other equipment.

It's still not certain what's going to happen, but I really need to put an end to this thing with the HC150 because my secretions and plugging are becoming so out of control It's really taking my energy, and my lungs need to be clearer, or I'm going to end up with Pneumonia, or something that I do not want.

I am certain that If I could get an actual heated wire system, this would improve, if not completely resolve the plugging issues, with those occasional plugs being an obvious thing with my trach, but if It could at least get me out of the continuous plugging issues, and  help provide more comfort to my ventilation, that would be absolutely wonderful. One shouldn't have to feel cold air in their lungs when being on a ventilator, and one shouldn't wake up coughing for hours at night because the cold air is very very painful in their lungs. I really hope that very soon I can get rid of this old HC150 becaude  I really need the propper heated humidifier for my ventilator.


In other words, Tomorrow, Heather and I, will be going to the University to play the harpsichord. Well I'll be playing the harpsichord, and she'll be listening, and O, and guess what. One of our friends wants to come and hear me play too, and that's what I'm looking forward to the most. It's gona be AWWWWWWWESOMe!! I look forward to playing for Edie and Heather before I come home and the person who works for this DME comes out. I mean, I love playing for others, and Edie loves classical music.

During the Drone party, at that small concert I performed, at the end when I'd played "Capriccio, BWV 992, On The Departure Of His Beloved Brother," by J.S. Bach, Edie was back there giving me a standing ovation, and that meant more than anything could begin to describe, and so as you might be able to imagine, tomorrow, the prospect of playing for Edie, and Heather excites me to such an extent. I can't wait to get up in the morning, and put on my Suit for the performance. Yeah, I'm the kind of person that wears a suit when He's going to perform.  And tomorrow will be no exception. I'm going to be standing before two great people playing a very very wonderful and special instrument, and I feel it's of profound importance to look the ABSOLUTE BEST. Essentially I will dress in a Suit like I did when I performed Aaron's Minuet, and like I did last time I played the harpsichord.

Classical music is something I take very very seriously, as it's my world. Classical music is my life, and is becoming more and more the case.

So, tomorow, I will dress up fully prepared for what's going to happen.

I hope that you all have a wonderful night, and may God bless you and keep you.

REMEMBER everybody!

ONLY HE, can love you PERFECTLY!!!

Really really bad night last night!

Last night really was a hard night. I was up most of the night plugging and these were complete plugs that were very quickly removed, from what I can remember. When you're life is in danger, and you're moving very quickly to remove something from your airway that  shouldn't be there, time seems to be slowing down, but It's very important that you get these plugs out very very quickly. Last night would've been much better if It had been filled with dreams of Harpsichords, and Minuets, however, It would've been much worse if It had been filled with plugs I couldn't get out as quickly as I got them out. So It could've been so much worse. I'm so thankful that I got them out with my In Line suction system, as without an In Line suction system, I'd be in huge trouble. Today has gone pretty smoothly. I saw Heather and went out with her for a few hours taking Mr. LTV 1150 with me,  obviously. My favorite part? I got to play some music at the Music store for her on their keyboard which I always have set to harpsichord mode. I LOVE the harpsichord obviously.  I got a hair cut today, and that went well, after we made some adjustments with my vent circuit, and got me comfortable in their chair!  It was such a blessing to go out with Heather even though I was not feeling good.
That made me feel  somewhat better, because she always knows how to brighten my day.

I'll write more tomorrow, I'm just too tired tonight, and need to hopefully get some more sleep, because I really can't afford another night with plugs. I HATE PLUGGING!

I hope you all have a good night, and that you sleep well, and those with trach and vents, have no plugging episodes during the night.
Thank you, and God Bless.
REMEMBER, ONLY HE, can love you PERFECTLY!!!

Temporary fix Hopefully

Well, after another awful mucous plug where no air went in or out from the ventilator, I finally got on Ebay, and bought something that'll just have to do. It's called a Hybernite Heated tube, and essentially It's the poor man's Heated Circuit, and It's not really used for ventilation of a trach patient, but It's all I've got. Essentially It has no temperature probes, and no digital control and so the hose will be set at a certain temperature, no control over what temp that is, and that'll have to do. I almost got two one for inspiratory side of the circuit, and one for expiratory side of the circuit, but one heated tube is $82, so   well, I'm going to see if one does all right first, and well all right being "What I'm Going To Get!" My DME if you ask me is a very sad story. It's just  ridiculous how they would give you something that's not even suppose to be used in a situation lke I'm having to use it in. If I were working there, they'd probably consider me the massive thorn in their side, but I'd make sure patients got the CORRECT humidity and I don't mean some heater plate that has a dial that you set with no idea what your patient air/oxygen temperature is, and no idea what your heater end's temperature is. That's dangerous, and unacceptable. I can empty the water fairly well, and yeah, I can somehow at 03:00  in the morning deal with a DISC/SENSE alarm because a massive amount of condensation resulted in some pouring into the Sense lines, but twhat If this were a patient with  ALS, or D.M.D. or what if it were a baby who couldn't say, "There's water pouring out of the circuit into my trach," and they have to feel the awful drowning sensation from the  water going where it should NOT GO!! IN THE LUNGS!! It makes me sick and hurts me to think about that, but hey, The HC150s would be OUT THE WINDOW if I worked for my DME, and  LITERALLY!! LOL!! I could put one on a drone, take that drone up 400 feet, and then release the cargo, somewhere below, maybe in the water, or maybesomewhere where It'd be damaged enough to land in pieces somewhere. I don't know, but it wouldn't survive, and would be replaced with something like an HC500, or even better, the MR850, which is truly a wonderful Heater.

But, we'll see what the Hybernite tubing does on my circuit. The only issue is having to change out the circuit every month which is going to be a huge pain, because either I'll have to get a new Hybernite system every month, or I'll have to change everything else out, and leave that Hybernite system in line for three to six months.

It's still nowhere near where I really should be, but Unless I can get sme assistance with what should have been a default humidification, That's gonna have to do.

I still think the idea of taking the awful HC150s up on a drone, and dropping somewhere would be fun. Why? Because drones would be involved, and  If there's a drone involved, I'm gonna be there.

Thanks a lot for reading another blog post, and May God Bless You, And Keep You.

REMEMBER my friends, ONLY HE, can love you PERFECTLY!

Plugging and congestion worsening, and what could have gone very very wrong!

Well, lately, things  are really starting to look uglier in reguards to my health.  I had plug after plug last night, and One where I could not receive air from the ventilator. Those plugs are complete plugs, and they're becoming more frequent.   There's not much that can be done. I'm going to start putting an HME in line with my circuit. I have a humidifier obviously, It's an HC150 as you all know from reading previous posts, but It's PAP therapy grade, so It's not even halfway near trach ventilation standards. I'm going to see what happens if I place a Heate Moisture Exchanger along with the Humidifier inside the ventilator's circuit to see if my humidification gets any better. We'll be going through HMEs continuously, but that's all I can do unless I get a Heated Wire setup. It just means that my DME will be sending a lot more HMEs. HMMMMMMM. Maybe if they have to do that, they'll  have a shorter supply, and they'll realize their patient is ordering a higher stock of HMEs than  normal, and then they'll eventually question me on that, and I'll tell em. "OK, Listen. You guys can't supply me vent grade humidification, so I'm having to use these HMEs, even with the HC150 humidifier, and until I have trach grade humidification that's just how it's gonna have to be, and that's it. If you actually somehow decide to supply me with humidification that is going to help me, and will thin my secretions out, and thus reduce the amount of plugging, and the amount of suctioning, that'll be wonderful, and You'll definitely get a lot less HME orders, at least from me anyways. Not only that, maybe your other patients will appreciate tracheostomy grade humidification as well as ALL PATIENTS WITH TRACHS SHOULD!!

But until that happens, you'll be sending me a lot more HMEs, than you would otherwise!"



LOL!

I'm a nut, and I'm proud of it!! IN OTHER WORDS, I've learned a lesson I won't forget. I take the garbage down every week wo It can be picked up. Well I did something really dumb that could have gone very very wrong. I took the garbage down this morning with Nobody up to watch me, and without my VENT!! I got very dizzy from a massive desat, and well  you all see where this could've went. VERY VERY BADLY!! I won't do that again. I got in, and put my vent on, but seriously, I could've ended up in very very bad condition, and then either somebody driving along on the road would've discovered me, OR my parents would've if I hadn't made it back. That would be very very bad.  What've I learned? 1: I'm to just stay on the vent at all times, and It doesn't matter what I wanna do, If It can't be done on the vent, then somebody else'll have to do it, or well It just will have to not get done. 2: If I'm gonna get the trash, or take it down, DO IT ON THE VENT, AND WHEN MY PARENTS ARE AWAKE, so that if something goes in the wrong direction, I'll be discovered quickly and I'll survive the incident, therefore have further concerts in the future, and not end up dead because I had a massive DESAT, and I went into cardiac arrest!

I will never do what I did this morning, because It could've gone very wrong, and I should know better.

Other than that, I'mstill loving life to the fullest and learning from life's events. I always try to take something out of everything that happens  in life. There's always something that we can learn from things that go on every single day, and we need to look at it and pick out what there is to learn!

Thank you for reading another blog post, and God bless all of you.

REMEMBER, ONLY HE, can love you PERFECTLY!!!

Massive desat last night!

Well, lastnight was not exactly what I called a good night but It could have been so much worse. I had a lot of plugging, and my vent alarm went off several times. I slept fairly well though, but I really wish we could have avoided what happened yesterday evening!

I got off the vent to go help Dad for a few minutes with the lawn mower. Now, with my Dad's health, He h needs help sometimes. I enjoy helping him. Well a few miutes off the vent to help him, and then about one minute of talking to my Mom, would cause me to desat to 53% when I checked my O2  sat. GRRRRRRRRR!!  ROARRRRRR!!!! STUPID DESATS!! Come on. This is ridiculous. I can't even get off the vent for five minutes to do something that I really enjoy doing cause I desat?? Now that's where I'm getting ticked off, because I mean, I would be sad if I couldn't help my dad, because he needs help, and with his back, and hisknees,  he needs help, and even with my desats, I'm pretty strong, when my sats are stable. Well, anyhow, I was really annoyed last night at the desat.
Anyhow, I got back on the vent, and well that's where I've stayed, and it looks like i'll be staying until we can get something figured out.

In other words, the  humidification issue is just making matters worse and I'm really getting really really ticked with the DME I use.

If things don't clear up soon, and we don't get the PROPPER heated humidifier for my vent, It's highly probable we'll be having to go to a different DME company, or at least getting another one for the humidifier, and using the primary one for the other stuff, because the HC150 has GOT TO GO!

I told one of my friends, IF we can get the right type of heater I'm taking this old one out with a sledge hammer, or by fire. LOL!!

Nothing would be more enjoyable than smashing this old CPAP BiLEVEL grade humidifier with a sledge hammer, or taking a match to the thing, and hearing a very very nace CABOOOOOOOOOOOOOM!!

I want it  OUTTA HERE!! I need something like either an HC500, or an MR850 which obviously have Heated wires, and continuously monitor the temperature of the circuit, and the chamber, or tank that the water infuses into!! And then the HC150 ends up being a large mess of plastic crushed by sledge hammer, or charred rubble taken out by fire, and explosion.

LOL, or better yet, to avoid all the work of destroying this thing, the DME can just take the HC150 and I pray every day I never see one of those things again. LOL!!

That sounds  like a much better, and much simpler solution. Or I could attatch it to a drone, take the drone up to 400 feet, and then drop the  HC150 into a river off the drone. LOL! That'd be even better, because there'd be a drone involved in it's destruction!

But anyhow, I'm still thankful for life, and Thanking God every day for it because to me Life is very precious and well, It doesn't matter how much I desat, or how many plugging episodes I have. IT COULD ALWAYS be worse!

Thank you for reading another blog post, and i hope that you all have a very very wonderful rest of the day. On the next post, I will talk about something, or rather somebody very special, who's truly blessed me to such a profound extent in the short time that I have known her.
Our god is wonderful, and I want us to take time to give him Thanks for his never ending mercies, and His PERFECT LOVE!!!

ONLY HE, can love you PERFECTLY!

Drone party, and anothersmall concert!

Well, yesterday, I woke up early for an awesome day. I went to church and loved every second of it. when I got home, I rested until it was time for Mom and I to get ready for the concert. Dad and I packed everything up, including my keyboard and then when Mom and I left, I listened to very beautiful gospel music on the way up there, and I had my cuff inflated, but I waved in time with the music, and when we got there, Mom wasn't sure if we were at the right house, so she went in, and sure enough, we were where we were suppose to be. We got my ventilator, and my suction machine safely in the house, well of course, the vent was on me the whole time and so I just pulled it along with me. Whilst I was greeting everybody, they could tell that I was massively excited. some of my friends had seen the drone, which was charging, but I hadn't seen it yet. So, Mom helped me to the back porch, and I hung out there for a while whilst everybody else was arriving. I stood there and talked to friends, and then I got to tell them about the concert that wold take place later on. It was awesome.

I was so excited, and VERY VERY FLOORED, for what was about to happen. I sat out in the back yard in a chair, and conducted to my own orchestra, and talked to a few people. Mom and Heather moved me out into the shade shortly after where I sat, and listened to classical music in my head, and just had myself a good old time getting ready for the next couple of hours. So, whilst lunch was going on, or whatever meal they were having, I talked to a few people, and then heather  said, "Peter, We got a lil something for you!" Not only was there a cake with a picture of a drone on the top, but, Heather's friend Mat had brought over his motorcycle. I couldn't exactly ride on it, but i was about to sit on it, and when I found that out my heart started RACNG. I  wanted to scream, but that's kinda hard to do with weak diaphragm, and with a trach and a vent. But, I got to get off the vent for about  I'd say three minutes whilst i was sitting on the motorcycle. Ijust had to remember to breathe, which I did by reminding myself every few seconds. My heart  was racing when I got on that motorcycle, because I was sooooooo happy. I was about to get on the thing, and then, after they'd assisted me onto it, they showed me what It felt like when It was stood up, in the position that was used for riding it. It felt indescribably awesome. I put my hands on the steering device, and closed my eyes, pretending to floor it, goin down the road to a very fast Bach Piece. What do you think this Bach piece was? No other than the fifth movement of "Capriccio, Sopra BWV 992, On The Dearture Of His Beloved Brother!" The Postillion's movement, where the postillion blows that post horn, and signals that the horse has arrived! Yeah, that was such an indescribable feeling to do this. It was awwwesome!! I was then to experience somethin even better. They STARTED IT, and let me hear the engine whilst I was on it, and WOAH!!!! All I had to do was Put a helmet on, and  floor it. LOL! But with the trach, and other issues, that would not happen, but Hey, I am beyond thankful that i got to sit on the motorcycle, and rev the engine up by turning the steering device's lever. It felt awesome!! It felt massively wonderful, and tanks of Thankfullness filled my heart, because I was very very greatful for what they were doing for me. I could have started screamin the melody to that movement of "Capriccio," but I didn't have the speaking valve on, because I cannot tolerate the valve, and also, that's kinda hard to do for me with my respiratory issues, but in my head, I was doin it. Floorin the thing, and literally flying down the road to the piece I love and adore so dearly!! And in my head, I was going at the motorcycle's maximum speed. I was told that I road a motorcycle when I was little, but I don't remember it, and obviously, It had to have been wayyyyyyyyyyy before I knew about Classical music, much less "Capriccio!" Otherwise, I'd've been screaming the melody to that piece out. LOL!! It would have looked very very unconventional a lil guy like me goin down the road on one of those things, screamin the melody to a piece like "Capriccio," but I'm sure if I knew about this very very awesome kind of music,  I'd've been doin it, and doin it loud, cause that was wayyyyyyy before I got the trach, and the vent. I must've been two, or three  It seems like Mom told me. I don't remember a thing about that ride, but, hey! Heather and I are goin to eventually go to a game center where there's a simulator, and I'm gonna ride on a simulated motorcycle. Where I can get on, and move around without worrying about the thing flipping me over, all cause I was tryin to conduct to a  fast piece on a motorcycle. I've learned quite a bit about motorcycles lately, and one thing that I learned was that If I tried to move, or jump around or conduct on a motorcycle it would tip over, cause you have to go with the motorcycle and if you start jumpin around, especially whilst one is goin slow, and you're tipped toward one side, You'll learn a very unpleasant lesson, and possibly a PAINFUL lesson. "DO NOT do that whilst You're on one of these things!" I'd imagined myself conducting and moving around on a motorcycle, and even written it about in previous posts on this blog, however, I had no idea that this was unrealistic thinking, ad you can't be jumping and jerking around whilst you're on a motorcycle. Especially when you're getting up to speed, because You're the one who's holding the thing up yourself. If you're trying to conduct to an orchestra in the back whilst the driver is guiding the motorcycle, you're gonna cause him to wreck, and that's not gonna be very much appreciated with the owner or the driver, because He's going to lose control, and/or It's just going to turn over, and the driver might not want you back on his motorcycle.

Heather had to tell me that one day. With my Tourettes, and my excitement sometimes, I jump around A LOT, and some of that I can't help but if I was on a motorcycle, and that all started hapening,  The driver and I would be on the ground very very quickly, and I'd really upset, and maybe even injure the driver. I would not want to injure anybody, accidentally, OR on purpose, so, It's best if I really don't ride on the thing, because, well I've learned that I would not exactly be compatible with a safe motorcycle ride, because of all my movements, and well the temptation to conduct and jump around to an awesome classical piece! I'd make it rough for the driver, and I want people to be as safe as possibly possible on a motorcycle.

Those things are dangerous, and they can be deadly if somebody's not careful, or they do not know what they're doing, or is somebody on the back starts conducting to an orchestra!!!!



Anyhow, I've gotten wayyyyyy off topic here. When I got off the motorcycle, I profusely thanked Mat, the owner, and wished him God's blessings!

Now for the drone part.

I did not exactly get to really do much flying with the drone, but I did get to press some buttons, and move it some. You see, one of the propellors was messed up, or something was not as it should be, and so well, the thing wasn't flying well, and so the owners tried to get it to fly, but with an injured propellor, we couldn't really do that well. I did get to stand there, and got to drone on and on about broken windows, and people getting hit in the head with drones, and I was teasing Heather about which window In her house I should take out first, and who I should hit first with the thing, and we were llauthing. I was standing there loving every second of the event, and talking to Edie, Heather's and Mine's friend, about classical music, and we were having a blast. You see, Edie, has listened to my favorite Piece!! She's listened to "Capriccio!: YAYYYYYYYYYYYYYY!!!!! I was really having a good time talking to her.

finally it was time for me to put on my concert. We got out the keyboard, set the stand up, and Sammy went to set up the amplifier, and  we had to move the keyboard close to the house so that we could connect the amp to it. Once it was connected we found a propper chair for me to sit in, so that I'd be at a correct height on the lawn to perform the concert. The concert started with as I always like to start out with. The Minuet in G Major, well the most commonly known one  from the Anna Magdalena Bach Notebook. And then many pieces later, It was time for the highlight, and what I had almost saved for last, but the couldn't wait anymore, and so, here comes "Aaron's  Minuet In E Flat  Major!"

First I talked about How Aaron had inspired me in my music, and how His mother had taken him to church, and discovered he was waving in time with the music, during Song Service! This still touches me today when I think about it. Finally, I played the Minuet, and then it was on to the next piece. to be honest with you all, It only seemed like five Minutes had elapsed, but I'd been playing for about 40 Minutes, when heather was like, "Peter? Let's end with "Capriccio," cause you've been goin for like 40-45 minutes and people are leaving!" So, I ended with that piece and then what do you know? Edie, our friend, was giving me a standing ovation, and I was so happy, and touched by that. It meant universes to me, and tanks and tanks of thankfullness to me. I was ecstatic at that Moment, and told everybody to give Sammy a hand for allowing me to use the amplifier! It was such a blessing to be able to use my friend's amplifier. That's a delicate andvery expensive machine, and to be able to play my music on it, meant more  than words or anything could describe. It meant so much to me, and I'm forever greatful for the blessingof being allowed to use this piece of equipment for the concert. Anyhow, the concert finally ended, and I was so greatful for the blessing of everybody's support, and their enjoyment of the music from the great composers.

I almost put my Mother to sleep with my Minuet that I've entitled the "Mobile Minuet!" That's what a mobile is meant for. to calm a baby down and/or put them to sleep. So, I guess the Minuet about did that to my Mother. LOL!

It was so wonderful to be able to play for everybody, and on the way home, Mom told me to inflate my tracheostomy's cuff to rest my lungs, and so I did, whilst we listened to music on the way home, me waving in time with the music.

The arty was everything I wanted, and MORE. It was wonderful to have this, and i was beyond thankful!!

Thank you to all who contributed and who set it up for me. It really means sooooooo much.

I want you all to know that you truly have blessed me, and all of you have a special place in my heart!


May  God bless you and keep you.
REMEMBER, ONLY HE, can love you PERFECTLY!!

THE DAYY IS HERE!!

WOAH!! The month of may has flown by sooooooooo quickly. I can't believe  I am saying this, but the day of my drone flight is HERE.  NOT TOMORROW, Not next week, Not next month, but TODAY, I am going to be flying a REAL DRONE. ON THIS DAY. I'm amazed at this thought. It just amazes me that this day is HERE. I'm here in this very day, and on this very day, I will FLY A REAL DRONE. A small drone or so I'm told, but a drone, never the less. It'll be a drone, and the drone will be in my hands. This is very serious stuff to me, and I'm just so excited.

I'm feeling really really well today on the ventilator, and ocygenating well. I had some plugging episodes last night, and in fact one complete plug, but  being that I have my In Line suction set up already, I can take care of these very quickly. At night I'm really on a lot of equipment. More than most trach and ventilator patients. I was on my vent, the pulse ox from my ICu monitor, the NIBP, or blood Pressure monitor that's incorperated into my ICU monitor, I had my In Line suction system connected to the suction machine, I was on my feeding pump, and I almost put my ECG monitor on to monitor my respiratory status, but then I check, and I'm completely out of electrodes! I'm going to have to get more.  I really don't remember what I dreamed about last night, but I would not doubt that It had to do something with this upcoming drone party that's happening TODAY, and probably a lil about harpsichords, and maybe Hubbard tanks, although, I have not really dreamed about Hubbard tanks lately.

I'm feeling really well today, and am fixing to go to church.

Video, and pictures will be on Facebook, and video if not pictures too will be on the blog. I'm fixing to pack up my ventilator and get things ready for church, and then after that I'll come home, and put my portable vent on the charger to charge the battery some, and use my home ventilator that's on it's stand until It's time to go to the party, and go after that, when I leave, I'll go on my portable transport ventilator once again. I  really prefer the humidifier VS the HME, but then again, the Humidifier as I've stated is still not vent grade humidification, but It's what I'm going to get.


I'm finished droning on about humidification and vents, because I just don't feel like anymore. Let's leave it at this.
If I get a heated wire humidifier It'll be a MASSIVe miracle, because well that is VERY VERY VERY unlikely withthe very very low class DME service I have. If I don't, which is more than highly likely the case, It won't shock me, because, ummmmm, It doesn't matter what kind of a script my Dr. sends in for the order for the RIGHt kind of humidifier. The point is, That's more than likely going to be another futile attempt with a heated wire system. In other words, We're dealing with futility here in  the lines of a vent quality humidifier.

In other words, "It's not  happenin!!"

Thank you for reading my blog post and may you all have a massively wonderfully wonderful day. May God's blessings surround you, and may God shelter you safely in his loving arms, where no harm can come to you. May you know the power and the wonder of our god, and may you do your best to give him praises, and witness for Jesus every single place that you go, every single day of your life. May his blessings pour down on you like  the universe's worst rain storm, and may you know each new mercy that comes to you each and every single day of your life. May Our God help you draw closer and closer and closer to him.

REMEMBER, INLY HE, can love you PERFECTLY!!!!!

Harpsichord concert yesterday, and two more days until!

YEAHHHHHH! I got to play my favorite Musical Instrument once again. The HARPSICHORD!! We went in yesterday after calling the director of the Music Department, and after she gave us the Go Ahead.  It was absolutely wonderful to be able to play that wonderful instrument. We were there for about an hour or so, and during the concert whe essentially said, "Just stay as long as you want!" That had me floored, and I said, OK, well then I'll just move in!" Well, Heather, and the director both laughed, and then I handed Heather the Camera from my left pocket, and said, "We're gonna record the whole entire concert!" So she started the video, and I played each piece after naming that piece, and then at the end as always, I played "Capriccio!" After around 40 minutes of recording, the concert was through, and after I'd had myself a good long session at my beloved instrument, we went so that I could thank the director, and then after that, we went outside, and I got quite excited when I was telling her the story of Aaron, and Heather had to remind me to remain calm. she said I did an amazing job, and so that truly meant a lot to me, and it was not exactly easy, but I did remain calm. I just love to play my music, and love to bless other people.

In other words, we have two days until  my drone party occurs at heather's House!

I'm so excited. Two days from now, at  this time, I'll probably be at home and I'll most certainly have the status as "Have Flown Drone before!"

I'm not going to hold the status as "Never Flown Drone before," much longer.

This status will remain for less than 48 hours, and then It'll be a former status, but no longer a running status,  because most likely 48 hours from this exact time, I'll be home telling everybody about the drone flight, and uploading pictures/videos, to Facebook, AND Youtube. NO DOUBT, there WILL BE VIDEO, and A LOT OF IT!! yesterday's video which was around 40 minutes long, took over three hours to upload to YouTube and I was like, "Is this normal, or is our Internet giving out again?" LOL

Things have changed so drastically the last year, and they're still changing. I'll be flying a drone, and very very soon!

I'll be on the ventilator obviously, but ya know, who says You can't fly a drone on a ventilator?

I say YOU CAN!

I'm about to do it, and do it on video!

In other words, still no word from the Dr. on the Heated Wire setup they faxed an order for into my DME. I'd say the DME probably said, "We don't have them, and we're not gonna order them!"

I'm still dealing with a  load of thick and green secretions, and still very congested plugging numerous times every hour.

But hey, DMEs usually are not gonna do anymore than they have to. I've really kind of learned this lesson the hard way.

but, I'm still profoundly thankful for life, and am so excited about the Drone I'm going to be flying!

Lately with all of the things I've had to be thankful for, There's this song by Raffi that I just LOVE, and have for a number of years. It's called "Thanks A Lot!"

I heard it in 2010 when I was reccovering from the third operation to open my nose up. Long story short, my nose was completely closed, and it took three attempts to actually get it to stay open, because scar tissue kept closing it up.

but anyhow, I love this song.

I will post the link of the video tomorrow, but you know, I've had that song in my head a lot lately, and have listened to it numerous times lately. I tell Heather all the time that If I tried to explain how thankful that I was for what her, and her family had done for me, and what Mikey the Drone's  owner was about to do to me, and other things that've blessed me, If I'd  attempted to explain this stuff, I'd never get finished with it, so It all ends up coming down to Three simple words, and that's it.

Those words that I said to Heather?

"Thanks A Lot!"

It all has to come down to those three words, to avoid a never ending attempt to thank Heather, and her family/friends.

Heather Has heard this song, as I sent  it to her a couple of weeks ago, when the scheduling of the Drone party was inprogress.

If you catch me singing that song, well You'll know i'm indescribably indescribably happy! And trust me, I'm DEAD SERIOUS!! 

I'm seriously about to fly a REAL DRONE and play for several people on my keyboard.

If I sing that song, It'd most likely take place whilst I was flyin that drone, cause when I'm flying that thing, It's gonna be profound, and It might just be a small drone, but seriously Little drone, or house sized drone,  a drone, if It's a drone, well then It's a drone, so if I'm flying a $3000 drone, or a $20 drone, well the point is, I'm flying a drone.

LOL!

A drone is a drone, and if you're flying a drone, no matter how tiny winny it is, you're flyin a drone.

That song by Raffi is so beautiful, and It reminds me of how thankful I am, and what's happened to me.

It reminds me of how blessed we truly are!

I'm beyond excited about this drone party, and I'm literally counting down the days on Facebook, and have droned on about this event so much that My Dad is like, "OK, Peter?

I don't want to hear about it anymore!!

I know I've got a habit of droning on, and droning on, but well that's what got me my Doctorate in Droning.

LOL!

Thank you so much for listening and/or reading another blog post, and may  God's blessings be with you my friends.

Remember everybody, ONLY HE, can love you PERFECTLY!!

Going to play the harpsichord Tomorrow!

Who says just cause you're on a ventilator means you can't play the harpsichord? I say, YOU CAN, and it does not matter if you are on, or off a ventilator. Who says tomorrow I get to go and play the harpsichord at Campbellsville University? Well, the director of Music Department, the one who runs the department! who is gonna go play the harpsichord tomorrow? Me! How do I feel about that,  I've been so excited all day, and well yesterday when I found out it was happening tomorrow, I went VERY wild. Yeah, people can still get wild on ventilators. This time,  however, I am not going to go barreling through the house with my ventilator, thus not seeing Heather who then gets HIT  by the suite case. That's not gonna happen. Tomorrow, I'm going to wake up, get dressed in suit, and looking the best possible, even though with my trach, I won't be able to put a tye on, but hey, that's something I'm still having to get use to, and that is NOT easy to do, but I am just going to have to accept the fact that a tye is out of the question because of the trach, and especially now that I'm a 24 hour vent user.

Anyhow, tomorrow, Heather and I are goin t and she's going to listen whilst i play my favorite instrument. The harpsichord! I'm beyond excited. I'm beyond ecstatic about this! O, and there will certainly be video. I'm gonna try to video the whole entire concert that I'm putting on.



Speaking of concert, I only have four more days until the big drone party, and until I put on a concert at Heather's house for all of her friends, and my friends. I'm  counting the days down one by one.

There is certainly going to be video footage of this too, and not only the concert, but the drone flight as well, and who knows, I just might sing.

I'd sing about how thankful I was. About how thankful I am for so many things. Our God is truly truly truly mighty, and he deserves to hear songs of greatfullness, and of thanks giving, and even though It's not thanks Giving Holliday, to me, every day is a day of Thanks Giving, well for me it is anyways.

Of course, it  should be for every single one of us. But with all that's gone on with me this year, I might have gone from partially vent dependant to completely nable to get off the machine, but hey, when the year started I was talking about needing to see a Hubbard tank, and needing to play the harpsichord, and I could honestly say I Never had flown a drone or felt a drone, or even held a drone inside of it's box, but well, I can't say I've never held a drone in it's box, and four days from now, I  will have officially taken up status as Drone flier, so the statuses that may be present today, four days from now at this time, I'll have touched a drone, held a drone, not just in the box, but Literally out in the air, IN MY  HANDS, and will have flown a drone, with the drone's controls in my very own hands. So next week at this time, I'll be able to truthfully say, "I flew a drone!"



I'm so excited. This year just keeps on droning on, and getting better and better and better and better. It's not even halfway over either.

There will be much more coming, and you will hear about everything.  If I sing of thanksgiving, you will know I'm very very happy.

I plan on singing songs I've made up about Heather's and Sammy's windows too, but that's for a later post.

LOL.

God bless you all, and may his new mercies be poured out upon you, and may you always remember to give thanks to the one who died for us all.

The one, who gave his very very own LIFE for who?

The biggest drone known to man?

NO!

For a harpsichord?

NO!

FOR US!!

Remember, ONLY HE, can love you PERFECTLY!!!!

Still can't get off the ventilator, and church service!

Well, It seems that I'm still unable to get off the ventilator period. I desat if I try. So we'll just stay on the ventilator. I'm also having more plugs, but I'm maintaining that to the best of my ability with the humidification that I have in line with the vent. Of course, as stated previously, that dial is maxed out, and unless I get a heated wire humidifier, that's where it's going to stay.



In other words,  Dad and I went to church yesterday, and I JUST LOVED IT. It was with my ventilator and the suitecase that the LTV ventilator is in. With the vent requirements I need,  I don't think I'd be able to tolerate a Trilogy. Even in the hospital, I tolerated the Servo Ventilator better than I did with the BiPAP machine they had me on for a lot of my stay. This was before I got the trach. But anyhow, At church, I could not speak because of the ventilator, but somebody came up to me, and they made my day with what they said. They said Hello to me, and Dad said, "He can't speak. He's on the vent." And she said, "Well, Peter? Just keep that smile, and we'll be great!" That made me even happier! That really really made me feel awesome. Ya know, even though I cannot speak on the ventilator, I find my way of communicating, and find my ways of enjoying my life. Being on a ventilator is not the end of the world. Being on the ventilator for me is natural tome.  It may restrict me to the circuit's length, but hey,  my keyboard is in my reach, so that's what matters. Hahaha.


In other words, I'm practicing my piano a lot for the upcoming drone party. It's only in SIX DAYS!! Time flies when you're waiting for something massive to occur, and no doubt, this thing is going to be massive!!

Thank you for reading another blog post, and may god bless you and keep you! REMEMBER, ONLY HE, can love you PERFECTLY!!

Sunday can't wait, and I just HAVE to tell you right now!

Well, Sunday just can't wait, and I just want to tell you all so badly what's going on with me. In just EIGHT days from today, and today is quickly passing on. I don't think I  am going to wait anymore to tell you all about what is happening.

In just EIGHT days from today, that is until today leaves us, I am going to be going to a party somebody has planned FOR ME. Guess who that somebody is. Heather. My dear friend. This isn't just any party. It's a drone, and musical party. I'm going to be flying somebody's drone. He's one of Heather's friends, and he's going to let me fly  his drone, and I've invited several people, and so when I started doin that, Heather just said, "OK, we're gonna throw you a party! A DRONE PARTY!!" Words do nothing to describe the excitement that has been accumulating minute by minute for this thing. We only have EIGHT more days, and the month has gone by SO QUICKLY! It just amazes me how fast time flies when something exciting is about to happen to me. IT FLIES!!

What's going to happen at this drone party? Several things. There is going to be a cook out, and  obviously there will be drone flight. There's going to be music, from my keyboard  that I'm going to be bringing, and not only that, but if it's compatible with the amp that Sammy has for his guitars, well then, it's going to be connected to the amp, and  we're not going to blow speakers, so I can't just max out everything. That'd be BAD. I don't think Sammy wants an amp with it's speakers blown out of the thing! CABOOOOOOOOOOOOOOOOM!! LOL

What good is an amplifier with blown out speakers? I don't know, unless you fixed the speakers, I guess that's it for your amp if you do something that blows your speakers. So, let's try to avoid that!!  LOL! But anyhow, I'm playing my keyboard, and I'm BEYOND  excited for that, and oh yeah,  Who knows, I might even sing! LOL Sing about Hubbard tanks, or Drones. Sing about the whirlypool in Hubbard tanks!! LOL Whirly pool is another weird name for whirlpool I made up, but it's not a real word. LOL. Whirlypool!! What does a whirlpool do? It WHIRLS so would that be considered WHIRLY? LOL

Anyhow, I might sing about Drones, and Harpsichords, and oh yeah, CRASHING THE DRONE INTO Heather's WINDOW!! I've already started making songs up about that.

LOL!

HMM, as thankful as I am, I wonder if I will sing about how thankful I am, or something about thankfullness. HMMMMM. That gives me some ideas, or rather AN IDEA!! HMMMMM.



But when I play the keyboard, I will be playing the Minuet I composed for Aaron. I will be telling his story, and how he's inspired me to play my classical music. YES, I am so excited. Perhaps, that's what I'm MOST excited about. PERHAPS that's the biggest thing that's causing my excitement level to sky rocketwith tanks of excitement just waiting to pour themselvel out, or maybe that's already happening!

Anyhow, this drone party is coming very very soon.

I'm trying to think what I'll drone on, and drone on about then. LOL! Thank you all very much, and God bless you all.
REMEMBER ONLY HE, can love you PERFECTLY!

Possible Pneumonia, and other issues, but a HUGE blessing from God!

Well, as you all know, I've had quite a few health problems lately and now can't even get off the vent for more than a couple of minutes before my sats start tanking. I am officially 24/7 vent dependant, but I'm still loving life.

I went to see my pulmonary Dr. Wednesday, and He in seeing that things were not very good, ordered, an ABG, CXR, that's a Chest X-Ray, a CBC, and a sputum culture.

The  CXR showed a spot on the lower left lung and he's not sure what it could be, so I'mon very high doses of Antibiotics and he's treating this just as if this were Pneumonia.

If this is Pneumonia, than since I'm on the ventilator, it could be considered VAP.

If you do not  know what VAP is, it is short for Ventilator Associated Pneumonia.

That's a risk for every single patient that is on a ventilator, and especially those who are on it 24/7 like I am.

I have not gotten the results for the labs, culture, and ABGs yet, so  further updates will follow as to what they show. Being that I continuously control my own vent settings, I'm closely monitoring my oxygen sat, and since I don't have CO2 monitoring, like some trach patients are getting now, I have to go by the pulse ox readings, and then by what shows up on the blood gases.

For now however, I'm vent a vent dependant who loves classical music, and who plays it.

Speaking of classical music, I went out with heather, and went to Krystal music, and I played the keyboard in the harpsichord mode.

I'd say we were there for about 30 or so minuets and then in the final minutes there, as we were getting my ventilator which is in a suitecase out, it was getting tangled in cables and stuff and heather said, "We're gonna destroy everything trying to get this thing out!"

I was dying laughing, and it was just sooooo funny because on the way out, I stepped on her toe and she said "OW," and then we almost got the circuit caught in the door of the place before we got out.

Maybe the vent had decided it wanted to stay.

LOL!

Maybe ventilators can play harpsichords.

Or at least LTV vents.

I am so thankful for the wonderful time that we had.

It was truly another blessing to add to the list.

Well, Sunday I've decided that I'm going to tell you all about the upcoming event that's occuring on the 22nd.

It's coming up so I'll go ahead and tell you all about it.

It has to do with Drones, my keyboard getting hooked up to Sammy's amplifier, and a few other things that I've got coming.

A few more things to add to the list of blessings that just keep on adding up and adding up.



In other words, I just received a GIGANTIC blessing from God today.

Well, my ventilator circuitpulls on my trach quite a bit, and It's caused some issues to where since I have had the trach, I've had to tighten the trach ties up to an extent where my trach sight is always red, or almost always red, and not only that, my neck always has irritation around it, and that's going to cause a huge problem eventually.

Well we loosened my trach ties up today and that caused some pulling on my trach, which really really was uncomfortable.

Whilst Heather and I went out, Dad made a circuit support out of shoe laces, but that was only whilst I went out, and whilst I had my scarf around the trach tube to hide the bandages.

When I got home and took the scarf off, there was not really a way to keep the circuit from pulling, so I had to hold it.

Now, here's where I rant about the DME again. UGH. TRUST ME, if there were other vent DMEs in my state, I'd be using something else, depending on what they had, and most likely they'd certainly be better than the current DME.

GRRRRR.

Last October, I'd requested a support arm for the ventilator circuit.
They said they had ordered it. One month later, it still was not at my house. Two months later in DECEMBER it was still no where  to be seen. I called them. "O, we ordered it so it should be there sometime!" YEAH RIGHT. It's MAY, and slast month, I was just like, "FORGET IT!" Or rather in January I was like "JUST FORGET it!!"

Well, the irritation from the trach sight was getting worse becauseof the tight fitting trach ties, and it has become an issue.

If that gets INTO my stoma, we'd have a VERY VERY situation on our hands.

No doubt, it would lead to another hospital  stay, and operations, which means what?

MORE NARCOTICS!! I HATE HATE HATE narcotics.

OK, so if you need them, yeah, I guess you need them, but if you can get off them, PLEASE TAKE MY ADVICE, and GET OFF THEM A.S.A.P. I just don't see how people can get a high from that stuff. I hate the way it makes me feel. It makes me have horrific dreams, vomit, stops up my GI tract, and GRRRRR I just want to scream thinking of those drugs.

I HATE THEM!! And I've had too much experience with them, as I've had more operations than I can count, but not only that, I've had one episode  in 2013 that today, we still are not sure what caused it, but I lost the ability to move from the waiste down for 12 days, and that's when I got the G-Tube. I'm still requiring the G-Tube, but since the trach, the Neuropathy  the hearing loss, and other issues went away  however, the G-Tube will stay.
Anyhow, I was in horrific pain when I had that hospitalization where it felt like my body was on fire and I was  unable to move from my waiste down. A few people have wondered if it might be a case of Guillain Barre Syndrome, but that is very unlikely.

Anyways I've started droning about another topic totally different from the trach area irritation, and the other issues we were droning about.

Sometimes you drone about something so much, you start droning about other things whilst you are at it.

LOL!

Well, a few days ago, I asked my Dad if he had a microphone stand outside in another building, because he use to preach and so we both went out and we looked today, and GUESS WHAT!!

WE FOUND ONE!! WE FOUND something that I'm currently using as my circuit's support whilst I'm typing this long blog post!

YEAHHHHHHHHH!!

It works so well, and I'm sooo thankful!!

Now I have my trach ties much looser, so that my trach area can heal.

Praise the Lord for my wonderful parents.

I'm beyond thankful right now for them.



In other words, I've decided to try one more time for a Heated Wire Humidifier, and then I'll have to consider it a lost cause.

At my Dr. the other day, I told him the situation, and was so descriptive, I told him how to write the script, and told him to write that I was NOT tolerating the HC150 heater. I told him to tell the DME when they called saying that they don't have those kinds of Fisher and Paykel Heaters, "LISTEN.

If you don't have them, you have the written script saying that the patients needs them, so GET THEM!!"

I don't like being rude, or telling other to do something in rude ways, but I've learned a hard lesson, and that's sometimes with DMEs, you have to get a little bit more demanding than you might otherwise want to be.

Do I like that? NO, because I don'tlike getting demanding at all, but sadly I've learned that this is how you have to be at certain times.

Well that's the situation I'm in right now, so we'll see what becomes of this, and we'll see what becomes of my DME.

LOL!
In other words, I'm still loving my life, and Thanking God for it every single day.

Thank you for reading this gigantic long post. If what I've done is not considered droning, than, well It just has to be.

God bless you all and REMEMBER everyone!

ONLY HE, can love you PERFECTLY!!

Yesterday I went to church, on the ventilator!

Well, yesterday, I went to church with my parents, and loved the whole thing, although I couldn't sing, and didn't say a word. Reason? Now my ventilator must be on me at all times, and so that meant it came with me to church, and so my cuff was inflated so this meant that no air escaped above the tube, and I had tight control over my ventilation and oxygenation needs. This was OK with me, however Mom and Dad had to do all of the talking for me, and so everybody there when they would shake my hand, and say good morning to me, I would wave at them, and smile, and Mom would tell them why I couldn't speak. Due to the issues with maintaining my O2 sats above the 60s without the ventilator, this ventilator has constantly droned in the background and I've listened to the rhythmic breaths come at exactly every  three seconds, which is exactly 20 times per minute.

Anyhow, going to church was a blessing, and they sang very beautifully as always!! We sang "Faith Of Our Mother," and "When We All Get To Heaven!" Well, THEY SANG!!

I sang from my heart!

I really was blessed that even though I was on the ventilator, I could still go to church, and that I could still enjoy the service which was very beautiful!

God bless you all, andmay you  each have a wonderful wonderfl rest of your week with God guiding each and every step you  take and breath you take.

Remember to breathe guys.

REMEMBER, ONLY HE, can love you PERFECTLY!!!

My very special Mother!

I am so thankful beyond description for my Mother. Words do NOTHING to describe how much my Mother has blessed me.

When I was three weeks old, she picked me up from the hospital in the NICU, and she took me home adopted me, and there I'gve lived for 24 years in a wonderful wonderful house with wonderful parents who've nurtured me, keptme safe, and taught me all about Jesus.

When I was a wee lil guy, my Mother made me a blanket and brailled my Birthday on it, so that I could feel it and this has always been, and always is going to be very special to me. She's the one who stuck by me through the numerous operations and procedures, and who had to deal with the patient who droned on about the medical equipment like he was the Dr. Not that many people will tell you the workings of a Cardiopulmonary Bypass macchine at eight years old and not many people will drone on about ECMO, and ventilators at the age of nine, but I did, and Mom was the one who had to remind me to be quiet so that the Drs. could perform their work, and could conduct the examination.

When I had my trach, and when I woke up from surgery crying for my best friend Sammy, and mad that I could not speak, Mom was the one who said, "Peter? You are OK. Sammy isn't here, but you can call him later, but you need to rest and let the pain medications do their job!" When I couldn't see my ventilator's settings because of the ventilator circuit that was weighing heavy on my trach making it very painful to move, my Mom read them to me, and when I wrote on my Iphone that I was upset that Ineeded the trach inthe first  place she prayed with me, and told me that It was the best thing for me.

It's times like this I consider very special. My mom would often pray with me and we'd let Jesus take my frustration, and/or anger about a situation away. In fact last night, I came to her very upset because Aaron's Mother had posted on Facebook that he was desatting, requiring a lot of oxygen, and having to be bagged, and so her and I had a word of prayer for Aaron and I rested well that night knowing that Aaron was safe in the arms of Jesus. I'm so thankful for times like last night when Mom was there with me, and when we went to Jesus in prayer!


Another very very special thing about my Mommy is that she always sends me Drone videos that she finds online, and I LOVE watching footage from a Drone!

But most importantly, My Mother has loved me, and has given everything that she has to make sure I had as healthy and as pleasant of a life as possibly possible, and no doubt, she's done such a profoundly wonderful job at that, because I'm always happy, and always have a reason to laugh.

Thank you Mommy for being such a wonderful Mother and for fighting forme! I have so much to be thankful for, and you're at the top of thelist, next to Jesus!

God bless you all!

REMEMBER, ONLY HE, can love you PERFECTLY!!