Ventilator still droning continuously, and plugging episodes increasing!

Well, here lately as you all know, I'm having a lot of uncalled for issues, and am tiring easier. I'm still on the ventilator continuously, and still not holding my sats above the 50s and 60s otherwise which means, it looks like on the vent is where we stay!

In other words, I'm plugging in my airways more, and suctioning to keep my airways clear is a continuous battle! I'm going to the Pulmonary Dr. that monitors my ventilation/oxygenation this upcoming week and we'll see what he has to say. Honestly, if you want me to tell you what I think is causing the plugging? It's simple.  I need a PROPPER humidifier set up and REALLY BADLY!! As you've probably read in previous posts I talk about the type of humidification I have and what I honestly think is one of the worst ways you can provide humidity to your patients who are ventilator users, and  I talk about heated wire humidifier setups and even give you an example using baby Aiden as our patient, which is not really a real patient, but is an example patient!

Central Apnea wise, I have no idea what's going on in that department, except maybe I just need the ventilator more and maybe that'll decrease at some point in time, and maybe not! BUT, HEY, I've got a ventilator to breathe forme, when my brain decides it doesn't want to remember to breathe, and I've got a wonderful family who are there making sure I have the BEST CARE POSSIBLE!!

I'm VERY thankful! Speaking of Mother's day that's comin up soon, WOW, do I have a lot of things to be thqankful for, and my Mamma is one of them! I'll post a blog post on Mother's day in regards to my wonderful mother!

In other words, I'm still loving life, playing classical music be that on the ventilator that is, and  yeah I'm just waiting for a HUUUUUGE event that's coming up in 16 days!! 16 days and counting! We're heading there, and I know it!



Thank you for reading another blog post, and may God bless you and Keep you all safe in his loving arms.

REMEMBER YOU ALL, ONLY HE, can love you PERFECTLY!!!!!!

Still completely on the ventilator, but loving my music!

Well, not much has happened lately except for the ventilator use continuing 24 hours of the day. I'm just loving life though, and continuously on YouTube listening to my classical music.

Some might ask you what it's like to be on the vent continuously! It's pretty simple for me, as I have a pole mount for my ventilator, and so I can wheel it around the house, and also most of what i do is hang out in my room on YouTube listening to classical music, or watching drone videos.

I've seen a few funny drone videos lately, and they're housed in a YouTube playlist called "Droning gone Wrong!"

But anyhow, being on the vent continuously means that 24/7 my ventilator's drone is ever present, giving me breaths at 30-30 breaths per minute, and giving me these breaths through my trach tube which has a cuff and which remains inflated whilst I'm on the ventilator. The suction system is closed, so that every single time I have to suction my trach out, It's easy to do, and I don't have to disconnect the circuit  whichisn't good being performed a lot, because of the PEEP level I'm on and the increased risk of infection! as has been the casesince the trach, and will most likely be the case forever, I have the humidity setting maxed out on the humidifier, and this does the job that you're gonna get done with a Fisher and Paykel HC150  humidifier!



But life is still wonderful, because I have my warm house to live in, and my classical music and drone videos! Other than that, things have been peaceful and uneventful for me except for the desats if I try to get off the ventilator.

Thank you for reading another blog post. God bless you all.

REMEMBEr, ONLY HE, can love you PERFECTLY!!!!!

Plugging, and massive plug pulled out after IPV!!

Well, I wasn't feeling that great this morning. I performed Aggressive IPV with  my vent, with my Albuterol and Ipratropium Bromide, and during the IPV treatment, I discovered that not only was I plugging in my trach, I was plugging in my lungs. I got a MASSIVE plug out this morning, and whilst I still am on the vent completely, I feel so much better. My ventilator, whilst It does not go up to 300 Breaths per Minute like an IP ventilator does, It's better than what I'd get if I had a Trilogy. THANK GOD I don't have a Trilogy, and I have an LTV, otherwise,  I'd be in trouble. After my IPV, I feel so much better.  Our plan for today is IPV every four hours and then tomorrow I'll be calling the Pulmonologist and getting an appointment.

In other words, I've watched two awesome videos, one of the building of a harpsichord, and one of the building of a grand piano. The harpsichord video was my favorite video though. In other news, I'm watching full blown Harpsichord concerts. Now that's fun to watch on YouTube. If you want something to do for entertainment, there's a YouTube channel thathas several full blown harpsichord concerts, and let me tell you, These are AWESOME!!!!  I wathed this one which is my favorite cconcert twice yesterday. Why is it my favorite? Because It's got a couple of my favorite pieces on there, and yeah, It's got the NUMBER ONE harpsichord work that I LOVE. You all aut to know what that is right now after hearing me drone Non-Stop about it throughout this blog!! If you're new to the blog, and this is your first read post, well than that piece is as follows and will be mentioned somany more times  in the future!!

"Capriccio Sopra, BWV 992, On TheDeparture Of His Beloved Brother," by Johann Sebastian Bach!

Do I need to drone on about this piece in this post? I don't think I need to do that right now, because I want to get back to YouTube and watch more concerts, but I'll save the massive droning for another post  and when I say massive, It's ALWAYS MASSIVE!! LOL

In other words, I'm very excited for Aaron and his family. He got a new wheelchair a few days ago, and that's another answer to their prayers, as well as Mine!! God is truly good. He's PERFECT!!

So give God thanks for this!!

I want to thank those of you who read my blog and who follow it. I don't know how many do that, but I know a few!! It's very nice to have a blog that I can post what's going on in my movement of the Symphony we call LIFE! Yeah, I just have to relate everything around me to music. LOL!!!  


God bless you all!!

REMEMBER, Only HE, can love you PERFECTLY!!!!!!