Vent use increasing and lunch with a friend!

Well today, I went with Heather and we had lunch with a friend who I  took piano lesson with and who I had not seen in so many years. I told him all about the recent happenings with my health and so many other things. It was such a blessing. We talked about Hubbard tanks, Drones, classical music, and many many other things.

He remembers something very very important to mention here. This is how much I loved and still love classical music even now. Back when I took piano lessons with a very very good piano teacher well he played classical music. He had this student who played classical music very well. His name was Elton. Well, back then, when we took group lessons I actually kind of made it hard  for the teacher to teach, because well I was continuously talking about classical music. He had to get onto me some because, well I just could not sto talking. I would listen when he asked me to be quiet, but well, my friend who I saw who's name was Kyle, he remembers this, and he remembers that when Elton would  start playing, I would get real  quiet. VERY quiet. This was something I loved. When somebody is playing classical music for me, I do get quiet. I LOVE IT!! Its one of the times that I'm actually quiet.   Classical music is literally MY LIFE!! It's what I am It's what I will be forever.

In other news Heather and I went to the motorcycle shop today, and I did not get to ride a motorcycle, however I did get to get on one and sit. IT FELT Indescribable!! It felt wonderfully wonderful. Sitting on that motorcycle was such a profound moment. I remember doing it so clearly.  It was  a green motorcycle and as I was sitting on it, something very profound happened.

I closed my eyes, and I pictured myself going really really fast down the road on one of these things to the Fifth and Sixth movements of "Capriccio!" I remember it so clearly. It's one of those times when all of the wonderful events that have happened to me this year have come together. They've come together to make one really really really really gigantic blessing out of millions of wonderful blessings. And I  still have more to encounter, as This Friday we go to the Orchestra, and then very soon, probably the next Sunday after this upcoming one which is going to be on the 31st of this month,  THE DRONE!! It's just indescribable how wonderful this year has been!!

I sat on that motorcycle and It's when memories from the 24th of January when my video I had conducted for Aaron ended up being placed on his blog,  started racing through my head. It's at that minute when I was on the motorcycle that memories from that night went through my head and they seem so clear as if it had just happened.  I could have used a motorcycle that night to get on as happy as I was. Maybe I need to get a harpsichord and bring it with me when I fly that drone. LOL. That would not be an easy thing to bring. This year has been packed with blessing after blessing after blessing after blessing! I'm sooooooo thankful for what I've had happen to me this year, and I give god, Heather, My Friends, and my wonderful parents so much credit for it, and Aaron for the inspiration he's been for me and my music!!


In other words,  I took my ventilator with me when I went out with Heather today as i was desatting and needed it. I did pretty well today, and I'm thankful for the fact that I had my ventilator.

Well, thank you for reading this blog post. God bless you all.

REMEMBER, ONLY HE, can love you PERFECTLY!!!!

Such an ever so slight possibility of WINNING the humidification battle!

Well, I must say, over the last few days my respiratory status has deteriorated and I'm needing the vent more and even on the vent I've been desatting. Last night even with the High PEEP I'm using my sats didn't do what they were suppose to which was stay in acceptable ranges. My pulse oximeter went off numerous times throughout the night. Today I've not felt well at all and have beenexhausted from the lack of oxygen and Central apneas! If I was not a ventilator dependant the last several months, I am now essentially. But the good thing is I've got my vent and so that's obviously GOOD! In other words my DME provider that takes ccare of my vent stopped by to check on things and we got some orders in and talked to him about issues we are having with the DME not giving us what we need, and  so he's going to try to get some success in this department.

Another and the most important thing we talked about was the fact that regardless of whether they have them or not, I NEED a Heated Wire Humidifier system. With my secretions and my Humidification needs the Fisher and Paykel HC150 is just not going to be what actually SUCCEEDS in giving me the PROPPER humidity I need with my trach. This plastic thing with a dial and a Heater plate is not even designed for invasive ventilatory support. It's for use on PAP devices such as a CPAP or biLevel type of therapy where you are no getting ventilatory support with an artificial airway, but are using a mask. If you're using a trach, than YOU  SHOULD NOT be using one of these as they don't do anything to help with condensation, or they have NO WAY to set a Precise temperature. If you are a trach patient and you use a ventilator you really need a Humidifier such as the Fisher and Paykel MR850 humidifier. These have a heating wire inside the tubing and monitor the temperature to give you the precise temp that  you need on the ventilator.

Well I told the RT that I NEEDED a heated wire circuit and that's just it. I explained that the HC150 was  not even designed for invasive ventilatory support, and I went on to deep details of research I'd conducted, and he said that He'd see what he could do.  It's up to the boss at the DME area whether this actually does happen, or whether it's another lost cause. I really hope that this does work out like I need it to so that I can finally get WARM air when I'm on the vent and no sort of cool warm air that I don't call propper humidity, because It's NOT propper humidification. Don't call something propper if it is not propper. The HC150 might be propper if you are a sleep apnea patient receiving a Low Level of CPAP, but even then I think you should be on a heated wire system. But OK, if you want to put a patient on an HC150 with a PAP machine that doesn't have a built in heated Humidification system, than you and the patient can talk about that, but to put a Patient who has a trach on an HC150 with an LTV, or any sort of ventilator that involves Invasive ventilation, It's just WRONG, and unacceptable, because not only does rainout in your circuit cause pressure fluctuations, but Water in the circuit can grow bacteria, and a trach patient has an open airway and that should be the Last thing that they need which is bacteria and infection to deal with! Not only that, if they have an LTV ventilator that water is going to pour into the exhalation valve flooding the thing and then you are going to get DISC/SENSE alarms, Autocycling,  faulty exhalation valves and a whole list of other problems that the patient with a trach, or any artificial airway DOES NOT NEED!!


I know I'm droning on about this, but I cannot stress this enough!! If you are a trach patient on a ventilator, YOU NEED a Heated Wire Circuit. It reduces rain out, It gives smooth and PROPPER humidity, and It allows a set temperature to be set and monitored, so when the temperature outside tanks outside into the freezing cold temps you will not have to deal with continuous rain out and horrific humidification!

Please pray that this fight to get me the Heated Wire setup is a success because I really need this  for my ventilator.

thank you very much, and God bless you, and keep you.

REMEMBER, ONLY HE, can Love You  PERFECTLY!!!!

A very strange and realisticc dream!

As you know, in the medical field things have to be done very careful. for example, in anesthesia, every medication has to be labeled propperly, and color coded. For example, the Propofol syringe usually has a yellow  label, as it's a Hypnotic. Narcotics such as Morphine and Fentanyl get blue labels, and Neuromuscular Blocking Agents, NMBAs, get red labels, such as Rocuronium, Vecuronium, or Cisatricurium.

Well, Propofol as a lot of you already know is a milky white medication of 10mg/ml and it's easy to seethis, however, it does not matter whether It's easy to see, or not, because IT MUST have a label. In my dream it was the one medication that was not labeled and I was being induced for anesthesia. They had connected the anesthesia machine to the trach, and I was on SIMV/PS and then I remember I was fixing to induce my anesthesia as I always do! Looking at the syringe I noticed it was not labeled, and I WENT OFF! I remember saying, "WHY is this medication NOT labeled?" They got defensive and said, "Well don't get upset at us, we just didn't label it because It's white and we don't need to!" then I woke up from the dream.

WORD OF CAUTION!! Regardless of whether it's a colored medication, or a clear medication, YOU MUST label your syringes of all yourmedications PROPPERLY!! YOU MUST make certainty that they are labeled correctly as one unlabeled syringe or one mislabeled syringe could lead to disaster. Especially in a stressful situation where medications MUST be administered quickly as in code situations, or Rapid Sequence Intubations, if you did not label that syringe, or those syringes, you might give Epinephrine when you meant to give Fentanyl, or give Vecuronium when you meant to give Midazzolam. The first would possibly KILL THE PATIENT when his heart rate sky rocketed, and he went into Hypertensive Crisis.

The syringes must be labeled. EVERY SINGLE ONE OF THEM!!

Thank you for reading my blog post, and god bless you.

Remember, ONLY HE, can love you PERFECTLY!!